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This Live Talk is produced by Being Patient with support provided by Cognito Therapeutics.
Learn more about Cognito's HOPE Study:https://www.hopestudyforad.com/
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Researchers and technology companies are looking into whether non-invasive, non-drug therapies — like electromagnetic, visual, and auditory stimulation — can treat Alzheimer’s disease. So, what does the science say about these emerging therapies? What can they do for the brain?
Dr. Michelle Papka, founder and president of the Cognitive and Research Center of New Jersey (CRCNJ), joined Being Patient Live Talks to discuss emerging technology-assisted non-invasive interventions for Alzheimer’s.
Papka is a neuropsychologist, psychotherapist, and researcher with more than 30 years of combined experience working in aging, Alzheimer’s, and dementia, and her own private clinical practice in New Jersey. She’s also an active public speaker, invited editor, grant reviewer, consultant, and committee member of multiple specialized organizations and publications on aging and Alzheimer’s.
For over 15 years, she has served as the principal investigator on industry-sponsored clinical trials for Alzheimer’s disease and age-related cognitive impairment. Presently, she’s the principal investigator on Cognito’s HOPE study, which is testing the SPECTRIS AD device’s efficacy and safety for people living with Alzheimer’s, and an advisor to Cognito. This device uses visual and auditory stimulation to create gamma wave activity in the brain.
Listen to the live talk to learn her perspective on non-invasive interventions for Alzheimer’s disease and what the future may hold for these treatments.
This podcast is part of the Journey to Diagnosis series, produced by Being Patient with support provided by Eli Lilly. Learn more about Journey to Diagnosis: https://www.beingpatient.com/journey-to-diagnosis/ Zelik “Zel” Bocknek joined Being Patient Live Talks with his wife, Gail Bocknek, to discuss his experience with diagnosis and living with early-stage Alzheimer’s disease. Zel, a retired business owner, started experiencing memory problems at age 84. He was later diagnosed with early-stage Alzheimer’s disease and is passionate about sharing his experience with diagnosis and living with the disease with others. He also participated in the lecanemab clinical trial and spoke about his experience with Maria Shriver on the TODAY show. Now 90, he continues taking the medication and enjoys downhill skiing, painting, and volunteering at the Toronto Zoo. Zel and Gail have lived in Toronto, Canada, for 60 years. They love to spend time with their three children and six grandchildren.
Precision medicine is a medical approach that considers a patient’s genes, environment, and lifestyle. In the realm of Alzheimer’s disease, experts are pushing for using this approach to improve diagnosis, treatment, and our understanding of the condition. But what does precision medicine for patients with Alzheimer’s disease and other dementias look like? The Alzheimer’s Drug Discovery Foundation (ADDF)’s Dr. Howard Fillit joins Being Patient Live Talks to discuss precision medicine and its potential in Alzheimer’s diagnosis and care. Fillit is an award-winning geriatrician, neuroscientist, and innovative philanthropy executive who has led the ADDF since its founding. He has authored or co-authored over 300 publications and is the senior editor of Brocklehurst’s Textbook of Geriatric Medicine and Gerontology. He has held faculty positions at Rockefeller University, the SUNY-Stony Brook School of Medicine, and the Cornell University School of Medicine. Fillit also maintains a limited private practice in consultative geriatric medicine focusing on Alzheimer’s disease and related dementias.
This video is part of the Journey to Diagnosis series, produced by Being Patient with support provided by Eli Lilly. Learn more about Journey to Diagnosis: https://www.beingpatient.com/journey-to-diagnosis/ Award-winning playwright and performer Samuel A. Simon joined Being Patient live talks to discuss his experience with Alzheimer’s and developing and performing his autobiographical play about his diagnosis journey, “Dementia Man, an Existential Journey.” Before becoming involved in theatre as a playwright and performer, Simon worked as a lawyer for Ralph Nader’s first advocacy group. He then spent 25 years as head of a public affairs firm. After he sold his firm, he became involved with theatre, with his first play, “The Actual Dance, Love’s Ultimate Journey Through Breast Cancer,” which has toured from 2013 to the present. In 2021, this play was turned into an award-winning biography. In 2018, Simon was diagnosed with mild-cognitive impairment and in 2021 with early-stage Alzheimer’s. He used his experience in his previous play to develop “Dementia Man, an Existential Journey.” In the play, he shares his “existential journey” as he navigates diagnosis and living with dementia. He also imagines a future for the millions of others living with the disease and what that would look like. Directed by Thadd McQuade with dramaturgy by Gabrielle Maisels, “Dementia Man, An Existential Journey” made its world premiere at Capital Fringe in Washington D.C. in July 2023 and is the recipient of the 2023 Dementia Arts Impact Award by the Dementia Spring Foundation. He continues to tour performances of the play throughout the United States. Simon lives in Mclean, Virginia, with his wife Susan. They have two children and four grandchildren. He is under medical treatment for Alzheimer’s disease and took part in a clinical trial.
This podcast is part of the Diversity + Dementia series, produced by Being Patient with support provided by Eisai inc. Learn more about Diversity + Dementia: https://www.beingpatient.com/diversity-and-dementia/ Simone E. Morris and her daughter Millie Walton joined Being Patient Live Talks to discuss their book Remember Me Grammy P, a children’s book about dementia. Morris’s late mother, Patricia D. Edwards, or “Grammy P,” lived with dementia, and the book traces how their family dealt with diagnosis, care, and discussions around the disease. As a Black caregiver experienced in providing training on diversity, equity, and inclusion, Morris will also discuss dementia care and access in marginalized communities. Morris is a coach, trainer, speaker, podcaster, and author passionate about inclusion. Wanting to help other families on the dementia journey, she wrote Remember Me, Grammy P, in collaboration with her daughter as a tribute to her mother. Walton is a fourth grader passionate about reading, art, soccer, acting, and singing. While the book is illustrated by Audeva Joseph, some of Walton’s artwork is featured in Remember Me, Grammy P.
Award-winning Alzheimer’s and dementia educator and best-selling author Dr. Macie P. Smith joined Being Patient Live Talks to discuss her latest book, “A Dementia Caregiver Called to Action: The Journey.” In the context of her experience as an educator and a licensed gerontology social worker, she’ll also speak to the caregiving needs specific to Black families and Black communities. Smith has over 22 years of experience coordinating care for aging and vulnerable populations. As the author of past books including, “A Dementia Caregiver’s Guide to Care: Just Ask Dr. Macie,” her caregiving insights and guidance have been published in national and international professional journals. She’s also an advisory board member with Leeza’s Care Connection. Watch the full interview to hear some of Dr. Macie’s top dementia care insights and how we can better support caregivers in Black communities.
Alzheimer’s advocate Betsy Groves joined Being Patient Live Talks to discuss her long and rocky journey to an Alzheimer’s diagnosis, her experience living with Alzheimer’s, and her work advocating for other patients on this journey Groves had a career as a clinical social worker in the Boston Medical Center in the Department of Pediatrics where she founded a counseling program for young children affected by trauma. Then, she taught courses in early childhood mental health and development at Harvard’s Graduate School of Education. In her early 60s, Groves first started noticing cognitive changes. Her doctor reassured her that there was nothing to worry about, and she was experiencing normal aging. But her concerns grew. A friend in the medical field arranged for a neuropsychological evaluation. The results indicated a diagnosis of Alzheimer’s, but the search for a neurologist to confirm the diagnosis took eight months. It wasn’t until 2021, at the age of 72, that Groves was able to get a lumbar puncture that showed amyloid in her cerebrospinal fluid and get an official diagnosis. Groves reached out to the Alzheimer’s Association, where she was able to get guidance on the journey. Later, she served on the 2022-2023 National Early-Stage Advisory Group and continues to do advocacy work for the organization. She lives with her husband Tim in Cambridge, Massachusetts. They have two adult daughters and three grandchildren.
Positive Approach to Care founder and dementia care expert Teepa Snow returns to Being Patient Live Talks for “Ask Teepa Anything” to answer Being Patient readers’ questions in real-time. Snow, MS, OTR/L, FAOTA, is an Occupational Therapist with over forty years of clinical and academic experience. Her experiences led her to the development of the GEMS® States of Brain Change and the Positive Approach® training strategies. Her company, Positive Approach to Care® (PAC), provides online and in-person education and products to support those living with brain change. She also founded the Snow Approach Foundation, a nonprofit organization based in Hillsborough, North Carolina.
Alzheimer’s disease is the most common form of dementia. Over time, Alzheimer’s progresses through the brain, causing changes that can lead to cognitive decline, and eventually interfering with everyday life, from daily activities like getting dressed, to having conversations. Alzheimer’s affects everyone differently. The timing and severity of symptoms could be different for each person, and it can be difficult to determine which stage your loved one is in as stages may overlap. So, this “7 stages” framework is only meant to be a guideline, but if someone you care about is living with Alzheimer’s, knowing the signs of each stage can help you assist in managing the disease — and having a bit of a clearer idea what to expect. Want to keep learning?
Explore our free, expert-vetted, science-backed interactive guide on the 7 stages of Alzheimer’s:
https://www.beingpatient.com/seven-stages-of-alzheimers-interactive-guide/
Are you taking care of a loved one with Alzheimer’s? Looking After Yourself While Caregiving: 3 Things You Need To Know:https://www.beingpatient.com/caregiving-strategies-dale-atkins/
Receiving an Alzheimer’s diagnosis is often a long, complex process, with many individuals facing delayed diagnosis or even misdiagnosis for years. A key reason for misdiagnosis could be the amount of training doctors are receiving on cognitive decline.
University of Washington’s Dr. Barak Gaster is trying to fill that gap in his work directing the Cognition in Primary Care Program, which trains doctors to improve dementia diagnosis and care. Gaster joined Being Patient founder Deborah Kan in a conversation on why diagnosing Alzheimer’s is so difficult to diagnose, particularly in its early stages. He also shed light on the barriers physicians face in recognizing mild cognitive impairment (MCI) and how primary care providers can improve diagnosis and care for those experiencing cognitive decline.
Watch the conversation to learn his practical advice for patients and caregivers seeking diagnosis, as well as his take on why these challenges exist and what can be done to improve the diagnosis process.
Alzheimer’s advocate Myra Garcia joins Being Patient Live Talks to discuss her experience with early-onset Alzheimer’s and her work with the Latino community to shed light on the disease.
After a career in classical music, performing in musicals and operas around the world, Garcia changed careers to work in higher education when her second child was born. A decade ago, Garcia started to have difficulty with her job responsibilities working in fundraising at the University of La Verne. A neurologist initially diagnosed her with Attention Deficit Disorder (ADD), but after continued memory issues, she was finally able to see a neuropsychiatrist. After a day-long cognitive testing and review of her medical records, Garcia was finally diagnosed with early-onset Alzheimer’s in 2020.
Now retired, Garcia served on the 2022-2023 Early Stage Advisory Group and continues to advocate for people like her. As the daughter of Cuban immigrants, she also has a particular focus on education and outreach in the Latino community. She also volunteers at a senior memory care center, sings in three choirs, and remains physically and socially active. Garcia also participated in the donanemab clinical trial.
Watch the interview to learn more about her story and her advocacy work in the Latino community
Dr. Catherine Madison joins Being Patient Live Talks to discuss how patients experience anosognosia in dementia, which is a neurological condition in which you are unaware of having a particular disease. She’ll explain how understanding this symptom can help caregivers step into dementia’s reality.
Madison became a neurologist after being a caregiver to her mother, who died of dementia in 2011. She worked with Dagmar Dolby to open the Ray Dolby Brain Health Center in San Francisco in 2014. At this center, she provides support for the individuals and families navigating a dementia diagnosis. In particular, Madison focuses on providing education to the community around dementia planning and care.
Listen to the full talk to learn more about anosognosia and dementia care.
Rutgers’ neurologist Dr. William T. Hu joins Being Patient Live Talks to discuss his research on “brain fog” or cognitive impairment in Long COVID and its relation to cognitive decline and Alzheimer’s disease.
Read about his research here: https://www.beingpatient.com/long-covid-brain-fog-alzheimers/
Hu directs the Division of Cognitive Neurology and Alzheimer’s Disease Clinic at Robert Wood Johnson Medical School, as well as the Center for Healthy Aging Research at Rutgers Institute for Health. His research focuses on biomarkers related to Alzheimer’s disease, frontotemporal dementia, and Long-COVID. Hu leads several research projects including the Rutgers Biomarkers of Neurodegeneration Project, Rutgers South Asian Aging Brain Initiative, Rutgers-Stanford Chinese Older Adult Study, Rutgers-NYU Resource Center for Alzheimer’s and Dementia Research in Asian and Pacific Americans, and the Cognition/Biomarker component of the New Jersey Population Health Cohort Study.
Watch the live talk to learn more about Long COVID, cognitive impairment, and Alzheimer’s disease.
With scientists studying if new semaglutide weight loss drugs could potentially treat dementia, many have questions about the potential impact of Ozempic and Wegovy on the brain. University of Virginia’s Dr. Heather Ferris joins Being Patient Live Talks to discuss the current research on the impact of semaglutide drugs on brain health.
An Associate Professor and endocrinologist at the University of Virginia, she specializes in the care of older adults with diabetes. Ferris’s research lab focuses on understanding how changes in brain cholesterol and insulin signaling can impact cognitive decline and the development of Alzheimer’s disease.
Listen to the full talk to learn what we currently know about semaglutide drugs and their impact on the brain.
Want to learn more about brain health and diet? Check out our interactive guide: https://www.beingpatient.com/guide-diet-brain-health/
Alzheimer’s advocate Reda Harrison joins Being Patient Live Talks to discuss her experience with her diagnosis of dementia, and later Mild Cognitive Impairment (MCI), and early-onset Alzheimer’s. She’ll also discuss how those diagnoses led her to work with the Alzheimer’s Association and back into quilting.
Harrison was diagnosed with MCI in 2018 and is now in the early stages of Alzheimer’s disease. After a group study on MCI at the University of Kentucky Sanders-Brown Center on Aging, she began researching the condition’s connection to Alzheimer’s disease, which led her to the Alzheimer’s Association. She became involved in volunteer work and with support groups as she navigated her diagnosis. Harrison was later named an Early-Stage Advisor for the Alzheimer’s Association in the 2022-2023 cohort and continues volunteering as an advocate.
Since retiring in 2021 from the University of Kentucky as a Surgery Coordinator, Harrison has been involved as an advocate for the Alzheimer’s Association. Beyond her advocacy work, she has rediscovered quilting and works on projects with her stepdaughter and members of the community. She also gardens as much as she can and takes piano lessons.
Internationally acclaimed author, Age Wave co-founder, and longevity expert Maddy Dychtwald joined Being Patient Live Talks to discuss her latest book, Ageless Aging: A Woman’s Guide to Increasing Healthspan, Brainspan, and Lifespan (Mayo Clinic Press). She also discussed the research that informed the book and key strategies women can take to improve their brains and overall health as they age.
Recognized by Forbes as one of the top fifty female futurists globally, Dychtwald’s work has also been featured in Bloomberg Businessweek, Newsweek, Time, Fox Business News, CNBC, and NPR. She’s the author of three previous books: Influence: How Women’s Soaring Economic Power Will Transform Our World for the Better, Gideon’s Dream: A Tale of New Beginnings, and Cycles: How We Will Live, Work, and Buy.
If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/
UW–Madison School of Medicine and Public Health’s Dr. Melissa Rosenkranz joins us to discuss her research on the link between asthma and dementia, specifically focusing on the impact of chronic, systemic inflammation on brain health.
Rosenkranz holds the Distinguished Chair in Contemplative Neuroscience at the Center for Healthy Minds and is an Assistant Professor in the Department of Psychiatry at the UW–Madison School of Medicine and Public Health. Her research focuses on understanding the underlying biology of the mind-brain-body interactions of stress, emotion, and the immune system. In her most recent work, Rosenkranz has been researching how inflammation, like that present in asthma, impacts long-term cognitive function and the risk for the development of Alzheimer’s disease.
Watch the live talk to learn more about asthma, inflammation, and cognitive decline.
USC Evolutionary Biologist David Raichlen joins Being Patient Live Talks to discuss how exercise and physical activity can benefit brain health, particularly for older adults.
Raichlen is a professor at the Human and Evolutionary Biology section of the Department of Biological Sciences at USC. His research focuses on the connection between human evolution, physical activity, and health across the lifespan. Currently, he’s focused on understanding how and why exercise and physical activity benefits brain structure and cognitive function, especially in older adults.
Watch the full live talk to learn what our evolutionary history can teach us about the benefits of exercise and physical activity for brain health.
If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/
University of California Berkeley neurologist Dr. Mark D’Esposito joined Being Patient live talks to discuss how people concerned about Alzheimer’s risk can optimize their brain health and function. He’ll also discuss how neural mechanisms impact cognition to provide context on strategies for improving brain health. D’Esposito’s research focuses on the neural mechanisms underlying cognition and how the brain recovers from injury, and he’s the writer/editor of seven books on this subject matter. He has served as President of the Society for Behavioral and Cognitive Neurology, Chairman of the International Society for Human Brain Mapping, and editor-in-chief of the Journal of Cognitive Neuroscience. Watch the full video to learn more about how you can optimize your brain and improve cognitive function.
While Alzheimer’s disease isn’t curable, research shows it may be preventable or postponable by controlling lifestyle factors like diet. Yet, with so many types of diets emerging, it’s hard to know what’s a fad and what lifestyle changes can actually support brain health. USC’s Dr. Hussein Yassine joins Being Patient live talks to answer questions about how diet affects brain health. Yassine is an associate professor at USC’s Keck School of Medicine. His research is focused on the intersection of neurology and nutritional sciences. At Yassine Lab, his team studies how lipids — particularly omega-3 fatty acids — affect Alzheimer’s disease. He’s also the director of USC Center for Personalized Brain Health, launched in 2023 to build research on the APOE gene and the role of fatty acids in the brain to advance personalized health to cut Alzheimer’s risk. Watch this live talk to learn more about how diet impacts the brain and, ultimately, Alzheimer’s risk.
Two thirds of people diagnosed with Alzheimer’s are women. In addition, research shows that Alzheimer’s biomarker tau protein accumulates differently and more quickly in women’s brains. Researchers like Rosalind Franklin University’s Lise Eliot are investigating how differences in brain structure for men and women are impacting Alzheimer’s risk. Eliot joins Being Patient Live Talks to discuss these gender differences in the brain and the current research in this space.
Eliot is a professor of neuroscience in the Chicago Medical School of Rosalind Franklin University. Her research centers on brain and gender development, focusing particularly on the role of neuroplasticity in translating early life experience into neural circuitry. She is the author of two books, What’s Going On in There? How the Brain and Mind Develop in the First Five Years of Life (Bantam), and Pink Brain, Blue Brain: How Small Differences Grow Into Troublesome Gaps (Houghton Mifflin Harcourt).
Former neuroscience nurse practitioner and Alzheimer’s advocate Doreen Monks joins Being Patient Live Talks to discuss her experience with diagnosis and her path toward advocacy. As she shared in her previous live talk with us, Monk was diagnosed with early-onset Alzheimer’s in 2016 at age 63, after which she became dedicated to sharing her story and working with organizations like Voices of Alzheimer’s, US Against Alzheimer’s, and the Alzheimer’s Association. Leveraging her background in neuroscience, specifically focusing on stroke care, management, prevention, and treatment, she uses her voice to reduce stigma around Alzheimer’s and promote education about the disease. Watch the full talk to learn more about her diagnosis and how she is using her medical background to educate others about Alzheimer’s disease.
Sarah Widmeyer joins Being Patient Live Talks to discuss her experience caring for her mother, Elaine, who passed away from Alzheimer’s in 2022, and how the experience set her off on the path to advocating for more gender diversity in clinical research. Widmeyer is an SVP of Wealth Strategies and CMO at Richardson Wealth, and she’s passionate about improving research and access to care for women. The end goal: to improve outcomes for women like her mom. Inspired by her experience as a caregiver and advocating for her mom as a patient, Widmeyer now serves on the Board of Directors of the Women’s Brain Health Initiative, an organization on funding research and creating education programs to combat brain-aging diseases that primarily affect women. Listen to the full Live Talk to learn more about her caregiving experience and her passion for advancing research on women’s brain health.
Pediatric psychotherapist Amanda Sullivan joins Being Patient Live Talks to discuss Leaf, a children’s book that commemorates the life of her mother, who died of frontotemporal dementia (FTD) in 2022. Sullivan wrote the book after struggling to find any children’s books on FTD for her own children. Leaf tells the story of her mother’s life in the hopes of giving young readers a chance to learn more about this type of dementia and the impact it can have on the family. In the live talk, she’ll discuss the book and how she hopes the book can help family members help children understand the disease. Sullivan is a licensed independent mental health practitioner (LIMHP) and licensed clinical social worker (LCSW). She resides in Lincoln, Nebraska where she co-owns a private practice of six therapists. She assisted in her mother’s diagnosis as well as coordinated and managed her medical care. Listen to this talk to learn more about Sullivan’s caregiving journey and how books like Leaf can help educate young people about dementia.
Brain health researchers are exploring new ways to leverage AI in the diagnosis of diseases like Alzheimer’s. One emerging field of study is that of vocal biomarkers: the way our voices sound. Some companies are even developing personal smart devices to identify vocal biomarkers — and, perhaps one day in the future, to aid in early diagnosis or even disease prevention. We asked David Liu, the CEO of Sonde Health, to join Live Talks to explain this emerging field, and tell us a bit more about the science behind voice biomarkers and their potential for early-identification of cognitive impairment. Listen to the full live talk to learn more about vocal biomarkers and their potential for early detection of cognitive decline.
High-tech treatments for neurodegenerative diseases are on the horizon. In fact, some patients already have brain implants that help address their symptoms through “reprogramming the brain.” Hear from one patient and his doctor about the real-life story behind this innovative new treatment for Parkinson’s. Speaker, author, and Parkinson’s Disease advocate Benjamin Stecher and neurologist Dr. Alfonso Fasano, join Being Patient live talks to discuss their upcoming book on just this topic, Reprogramming the Brain. The upcoming book, traces the experience of Stecher and his doctor Fasano’s 2021 decision to surgically implant two six-inch-long metal alloy spikes all the way through his brain. With the patient and doctor writing about the experience and what was to come afterward, the upcoming book will serve as a guide for the future of the brain and neuromodulation. Stecher, who was diagnosed with Parkinson’s disease at age 29, speaks regularly at academic centers and biotech companies about neurodegenerative diseases, research advocacy, and healthcare. The founder of Tomorrow Edition, he is a patient advisor to several organizations, including the Toronto Western Hospital Movement Disorder Clinic and Rune Labs. In addition to his upcoming book, he also co-wrote Brain Fables with Alberto Espay, published by Cambridge University Press. Fasano, who holds the Chair in Neuromodulation at the University of Toronto and University Health Network, is also a Professor in the Department of Medicine at the University of Toronto. In addition, he is staff neurologist and co-director of the Surgical Program for Movement Disorders at Toronto Western Hospital, staff neurologist at the Hospital of Sick Children in Toronto, and clinician investigator at the Krembil Research Institute and KITE – Toronto Rehabilitation Hospital. His work focuses on the treatment of movement disorders with advanced technology, pathophysiology, and treatment of tremor and gait disorders.
In this live-streamed Q&A with Positive Approach to Care founder and dementia care expert Teepa Snow, she answered Being Patient readers’ questions in real-time.
Snow, MS, OTR/L, FAOTA, is an Occupational Therapist with over forty years of clinical and academic experience. Her experiences led her to the development of the GEMS® States of Brain Change and the Positive Approach® training strategies. Her company, Positive Approach to Care® (PAC), provides online and in-person education and products to support those living with brain change. She also founded the Snow Approach Foundation, a nonprofit organization based in Hillsborough, North Carolina. Listen to this live talk to get your questions about dementia caregiving answered!
Alzheimer’s educator and activist Rebecca Chopp, Ph.D., joins Being Patient Live talks to discuss her upcoming book “Still Me: Accepting Alzheimer’s Without Losing Yourself.” As she discussed in a previous live talk with us, she’ll also be speaking about how she defies the stigma of Alzheimer’s by living with joy. Before Chopp’s diagnosis of Mild Cognitive Impairment and Alzheimer’s in 2019, she was a widely published author, editor, and academic in the fields of education, philosophy, religion, and feminism. In particular, she served as the 18th and first female chancellor of the University of Denver. She has also served as president of Swarthmore College and Colgate University, as Provost at Emory University, and as Dean of Divinity at Yale University. Since her retirement, Chopp has devoted her days to living with joy. She enjoys painting classical portraits and abstracts, hiking in the Colorado mountains with Buhdy, her dog, and spending time with friends and family. She also co-founded the advocacy group Voices of Alzheimer’s and serves as a board member of both the Alzheimer’s Association’s national organization and its Colorado Chapter. In addition to her writing and art, she is a frequent speaker on timely diagnosis, research for a cure, access and affordability of drugs, and lifestyle interventions for those with Alzheimer’s. Watch this live talk to learn more about her upcoming book — and her guidance for living well with Alzheimer’s. —---- If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/ Follow Being Patient: Twitter: https://twitter.com/Being_Patient_ Instagram: https://www.instagram.com/beingpatientvoices/ Facebook: https://www.facebook.com/beingpatientalzheimers LinkedIn: https://www.linkedin.com/company/being-patient Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/ #Alzheimers #MildCognitiveImpairment #PatientPerspective #Books
Dr. Ifrah Zawar joins Being Patient Live Talks to discuss seizures, cognitive decline, and dementia. As she discussed in our article on seizures, epilepsy can accelerate cognitive decline, and the condition can also be mistaken for cognitive decline. Watch the live talk to learn more about the connection between seizures, cognitive decline, and dementia.
Lou Niles joins Being Patient Live Talks to discuss his experience taking part in the donanemab clinical trial. The monoclonal antibody drug was revealed to have promising results in late 2023 and is currently awaiting FDA approval. Now retired, Niles previously served as an army officer, a combat helicopter pilot in Vietnam, and as a firefighter and paramedic in San Diego. Because his mother died from Alzheimer’s, he was aware that he could be susceptible to cognitive decline, which led him to do a 23&Me DNA test a decade ago. The test revealed that he had one mutation associated with a higher risk for Alzheimer’s. That’s why, when he saw that there was an Alzheimer’s study in Orlando, FL, where he currently lives, Niles decided to participate. Over the course of the trial, he discovered that he indeed has cognitive decline and amyloid in his brain. In the talk, Niles will speak about his experience with cognitive decline and participating in the donanemab trial. Watch now to learn more about the clinical trial experience with MAB drugs. ------------ If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/ Follow Being Patient: Twitter: https://twitter.com/Being_Patient_ Instagram: https://www.instagram.com/beingpatientvoices/ Facebook: https://www.facebook.com/beingpatientalzheimers LinkedIn: https://www.linkedin.com/company/being-patient
Dr. Ifrah Zawar joins Being Patient Live Talks to discuss seizures, cognitive decline, and dementia. As she discussed in our article on seizures, epilepsy can accelerate cognitive decline, and the condition can also be mistaken for cognitive decline. Zawar is an adult neurologist, epileptologist, and an Assistant Professor at the University of Virginia. Her clinical and research work focuses on seizures and epilepsy in older adults and epilepsy in people with dementia. She serves on editorial boards of prestigious epilepsy and Alzheimer’s disease journals and has won multiple awards and recognition for her research endeavor. Watch the live talk to learn more about the connection between seizures, cognitive decline, and dementia. _____ If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/ Follow Being Patient: Twitter: https://twitter.com/Being_Patient_ Instagram: https://www.instagram.com/beingpatientvoices/ Facebook: https://www.facebook.com/beingpatientalzheimers LinkedIn: https://www.linkedin.com/company/being-patient
Clinical psychologist, educator, and author Dasha Kiper joins Being Patient Live Talks to discuss her book "Travelers to Unimaginable Lands." Using her experience as a caregiver and counselor and research on neurological and cognitive research, Kiper shares stories of caregivers and people living with dementia in the book. In particular, using stories and neurological research together, she can shed light on the pressures on caregivers. Kiper previously was the Clinical Director for Support Groups at a New York Alzheimer’s Organization. She’s led groups for people in the early stages of Alzheimer’s and caregivers of those with dementia disorders. Kiper has also trained and supervised mental health professionals who work with dementia caregivers. Learn more about this book on dementia, caregiving, and the brain by watching the talk. __________________ If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/ Follow Being Patient: Twitter: https://twitter.com/Being_Patient_ Instagram: https://www.instagram.com/beingpatientvoices/ Facebook: https://www.facebook.com/beingpatientalzheimers LinkedIn: https://www.linkedin.com/company/being-patient
The process of finding new treatments for Alzheimer’s disease is one of trial and error — and every “failed” trial generates invaluable new data to help researchers and drug developers understand what works, what doesn’t, and why. On Wednesday, January 24th, at 10:00 a.m. PT/1:00 p.m. ET, drug trial participant Bill Sasse, who was a participant in Eli Lilly’s clinical trial of experimental monoclonal antibody drug solanezumab, joins Being Patient Live Talks to discuss his experience with the drug trial. In March of 2023, solanezumab ultimately failed to hit its benchmarks in slowing cognitive decline and the trial was discontinued. Sasse, whose father died of Alzheimer’s, had the unique experience of participating in a clinical trial for a MAB drug without having any symptoms of cognitive decline. An army veteran, retired business owner, grandparent, and a native of Columbus, Indiana, he joined the trial after being inspired by a documentary about Glen Campbell promoting the trial, asking himself, “Why not, me?” With his wife as his trial partner, he participated in the solanezumab trial for eight years before it was announced that the clinical trial had failed. He has participated in panels with Eli Lilly on his experience with the trial. Watch the full video to learn more about the clinical trial experience with MAB drugs. _____ If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/ Follow Being Patient: Twitter: https://twitter.com/Being_Patient_ Instagram: https://www.instagram.com/beingpatientvoices/ Facebook: https://www.facebook.com/beingpatientalzheimers LinkedIn: https://www.linkedin.com/company/being-patient Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/ #alzheimersresearch #solanezumab #clinicaltrials #alzheimers #dementia
Award-winning dementia researcher and educator Dr. Nir Grossman joins Being Patient Live Talks to talk about the potential of cutting-edge medical technology like deep brain stimulation as an emerging approach to treating neurodegenerative diseases like Alzheimer’s. Grossman is an associate professor at the Department of Brain Sciences at Imperial College London and a founding fellow of the UK Dementia Research Institute (UK-DRI). He received a prestigious prize from the Science Journal and American Association for the Advancement of Science (AAAS) for developing a new, non-invasive method of deep brain stimulation, called temporal interference, which is now in early clinical trials. Previously, this procedure required invasive brain surgery. His research has been published in scientific journals like Cell, Science, and Nature Neuroscience. Read the article here: https://www.beingpatient.com/nir-grossman-deep-brain-stimulation-dementia/ ___ If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/ Follow Being Patient: Twitter: https://twitter.com/Being_Patient_ Instagram: https://www.instagram.com/beingpatientvoices/ Facebook: https://www.facebook.com/beingpatientalzheimers LinkedIn: https://www.linkedin.com/company/being-patient Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/ #DeepBrainStimulation #Neuromodulation #AlzheimersResearch #Dementia #Alzheimers
🔥The 5 BIGGEST breakthroughs of 2023 in Alzheimer’s and dementia. 🚀 From the FDA's full approval of Leqembi, a game-changing Alzheimer's drug, to the revolutionary potential of PET scans in diagnosing Alzheimer's, get ready for groundbreaking news in #Alzheimer's and #dementia research💡 But that's not all—get ready to learn about direct-to-consumer blood tests, cutting-edge AI technology, and the latest insights on genetic testing. 🩺🔬 Don't miss this exciting discussion that's shaping the future of Alzheimer's care and prevention. Tune in now and become a part of the movement! Stay tuned by following us here and watching for updates at beingpatient.com If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/ Follow Being Patient: Twitter: https://twitter.com/Being_Patient_ Instagram: https://www.instagram.com/beingpatientvoices/ Facebook: https://www.facebook.com/beingpatientalzheimers LinkedIn: https://www.linkedin.com/company/being-patient Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/ #AlzheimersBreakthroughs #DementiaResearch #Leqembi #PETScans #BloodTests #AItechnology #GeneticTesting #BeingPatient
Award-winning dementia researcher and educator Dr. Nir Grossman joins Being Patient Live Talks to talk about the potential of cutting-edge medical technology like deep brain stimulation as an emerging approach to treating neurodegenerative diseases like Alzheimer’s. Grossman is an associate professor at the Department of Brain Sciences at Imperial College London and a founding fellow of the UK Dementia Research Institute (UK-DRI). He received a prestigious prize from the Science Journal and American Association for the Advancement of Science (AAAS) for developing a new, non-invasive method of deep brain stimulation, called temporal interference, which is now in early clinical trials. Previously, this procedure required invasive brain surgery. His research has been published in scientific journals like Cell, Science, and Nature Neuroscience. Read the article here: https://www.beingpatient.com/nir-grossman-deep-brain-stimulation-dementia/ ___ If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/ Follow Being Patient: Twitter: https://twitter.com/Being_Patient_ Instagram: https://www.instagram.com/beingpatientvoices/ Facebook: https://www.facebook.com/beingpatientalzheimers LinkedIn: https://www.linkedin.com/company/being-patient Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/ #DeepBrainStimulation #Neuromodulation #AlzheimersResearch #Dementia #Alzheimers
The key to understanding Alzheimer’s disease could be in our genes. While the cause of Alzheimer’s is still unknown, mounting research shows that carrying multiple copies of certain genes — like genetic variant ApoE4 — can significantly increase the likelihood of developing Alzheimer’s. By studying genetics and gene therapy, scientists are learning more about how genes play a role in Alzheimer’s disease and what can be done for prevention. Barrow Neurological Institute’s neurologist, author, and Alzheimer’s expert Dr. Marwan Sabbagh joins Being Patient to discuss how scientists are seeking to prevent Alzheimer’s through genetic research. Sabbagh, a board-certified behavioral neurologist at Barrow’s Alzheimer’s and Memory Disorders Program and a professor at the institute’s department of neurology, has served as the lead investigator on several prominent national Alzheimer’s prevention and treatment clinical trials. In this talk, he’ll speak about how genetic research, like that on the ApoE4 gene, can help us learn more about Alzheimer’s and how it can be prevented. This Live Talk is sponsored by Alzheon.
Xanax and other benzodiazepines (“benzos”) are often prescribed to treat symptoms like agitation, anxiety, and depression in people living with dementia. Yet, these drugs come with significant side effects and safety concerns, especially for older adults living with dementia. The Women’s Age Lab’s Dr. Paula Rochon and Dr. Christina Reppas-Rindlisbacher join Being Patient Live Talks to discuss why these medications are prescribed and what treatment alternatives they recommend. Rochon is the founding director of Women’s Age Lab, a geriatrician, and a senior scientist at Women’s College Hospital and ICES. She chairs the Canadian Institutes for Health Research Institute of Aging Advisory Board to support research and promote healthy aging across Canada. Rochon is committed to the development of trainees and new investigators in aging research and making valuable contributions to our future understanding of aging. Her team has won prestigious research awards, and published in peer-reviewed academic journals, disseminating key learnings and important findings from their research projects. Reppas-Rindlisbacher is a trainee with the Women’s Age Lab at the Women’s College Research Institute. She currently works as a geriatrician whilst completing her PhD in Clinical Epidemiology & Health Care Research at the Institute of Health Policy, Management and Evaluation (IHPME) at the University of Toronto. Her research aims to better understand how delirium care differs depending on sociodemographic factors such as gender, income, language, and recent immigrant status. Watch this live talk to learn more about benzodiazepines, why they are prescribed, and alternative treatments for people living with dementia. Read the Article: https://www.beingpatient.com/benzodiazepines-and-dementia/ ___ If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/
Classical music publicist, educator, performer, and dementia advocate Mary Lou Falcone joins Being Patient Live Talks to discuss her book, I Didn’t See It Coming. In this memoir of “love, loss, and Lewy Body dementia,” Falcone details the caregiving journey for her late husband, Nicholas ‘Nicky’ Zann, whose illustrations introduce each chapter. Falcone is an internationally known classical music publicist/strategist who has helped guide the careers of celebrated artists like Van Cliburn, Gustavo Dudamel, Renée Fleming, Sir Georg Solti, and James Taylor for fifty years. She’s also advised institutions like Carnegie Hall, Chicago Symphony, Los Angeles Philharmonic, Philadelphia Orchestra, New York Philharmonic, and Vienna Philharmonic. Combining her communication skills with her background as a performer and educator, she now advocates for Lewy body dementia awareness by sharing her story. Watch the live talk to learn more about her caregiving journey with Lewy Body dementia and her experience writing this memoir. ___ If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/ Follow Being Patient: Twitter: https://twitter.com/Being_Patient_ Instagram: https://www.instagram.com/beingpatientvoices/ Facebook: https://www.facebook.com/beingpatientalzheimers LinkedIn: https://www.linkedin.com/company/being-patient
The key to understanding Alzheimer’s disease could be in our genes. While the cause of Alzheimer’s is still unknown, mounting research shows that carrying multiple copies of certain genes — like genetic variant ApoE4 — can significantly increase the likelihood of developing Alzheimer’s. By studying genetics and gene therapy, scientists are learning more about how genes play a role in Alzheimer’s disease and what can be done for prevention. Barrow Neurological Institute’s neurologist, author, and Alzheimer’s expert Dr. Marwan Sabbagh joins Being Patient to discuss how scientists are seeking to prevent Alzheimer’s through genetic research. Sabbagh, a board-certified behavioral neurologist at Barrow’s Alzheimer’s and Memory Disorders Program and a professor at the institute’s department of neurology, has served as the lead investigator on several prominent national Alzheimer’s prevention and treatment clinical trials. In this talk, he’ll speak about how genetic research, like that on the ApoE4 gene, can help us learn more about Alzheimer’s and how it can be prevented. This Live Talk is sponsored by Alzheon. Watch now to learn more about the genetics of Alzheimer’s disease. If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/ Follow Being Patient: Twitter: / being_patient_ Instagram: / beingpatientvoices Facebook: / beingpatientalzheimers LinkedIn: / being-patient Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia.
Mild Cognitive Impairment (MCI) is associated with early stages of neurodegenerative diseases like Alzheimer’s and other dementias. Many people living with dementia cite symptoms of MCI as an early sign. Yet, there’s lots of confusion with what might be “normal” memory loss that comes with aging or a sign to see a doctor. UCSF’s Emily Paolillo, PhD, joins Being Patient Live Talks to explain MCI and what goes into diagnosis. As an Assistant Professor at the UCSF Memory and Aging Center, her clinical work includes providing neuropsychological evaluations to aid in diagnosis and treatment of patients with possible neurodegenerative diseases. In addition, her research focuses on evaluating digital health tools for early detection and monitoring of neurobehavioral changes in Alzheimer’s disease, as well as understanding how lifestyle behaviors can grant risk and resilience to dementia. RSVP to this live talk to learn more about MCI and what to keep in mind about diagnosis. If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/ Follow Being Patient: Twitter: / being_patient_ Instagram: / beingpatientvoices Facebook: / beingpatientalzheimers LinkedIn: / being-patient Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category...#Alzheimers #Dementia #MCI #BrainHealth
Navigating the holidays with dementia can be challenging, especially when it comes to travel. When designing a holiday trip, there are key strategies that caregivers can take in planning all of the trips this season may require. Dr. Alexis Eastman, a clinical associate professor at the University of Wisconsin School of Medicine, joins Being Patient Live Talks to discuss best practices for holiday travel and family gatherings for people living with dementia. Eastman currently serves as the director of Clinical Operations for the UW geriatrics clinics, the medical director of Badger Prairie Health Care Center, and the director of the Chronic & Preventive Care course at the UW School of Medicine and Public Health. She has developed and continues to innovate models of care for older patients, including pre-operative risk, memory evaluation, telemedicine, and other forms of comprehensive geriatric care. While the holiday season can be a busy and stressful time for caregivers, there are ways to make this festive season better for people living with cognitive decline. RSVP to this talk to learn how caregivers and people living with dementia can prepare for the holiday season. If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/ Follow Being Patient: Twitter: / being_patient_ Instagram: / beingpatientvoices Facebook: / beingpatientalzheimers LinkedIn: / being-patient Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category...#Alzheimers #Dementia #HolidaySeason #Caregiving
atching and accurately identifying a neurodegenerative disease like Alzheimer’s or another form of dementia early can make all the difference in the world to a patient and their loved ones: An early diagnosis means more time to plan for the future, join a clinical trial testing cutting-edge disease-modifying treatments, making lifestyle changes to slow symptoms, or spending more time with loved ones. On the other hand, a misdiagnosis could mean that patients receive the wrong medications, causing harm — and unfortunately misdiagnoses are all too common when it comes to dementia. Why is this the case, and what can patients do about it? Neurologist, author, and Alzheimer’s expert Dr. Marwan Sabbagh joins Being Patient Live Talks to discuss why dementias are so difficult to diagnose. Sabbagh, a board-certified behavioral neurologist at Barrow Neurological Institute’s Alzheimer’s and Memory Disorders Program and a professor at the institute’s Department of Neurology, has served as the lead investigator on a number of prominent national Alzheimer’s prevention and treatment clinical trials. In this talk, he’ll speak to the factors that make dementia so difficult to diagnose accurately for experts and clinicians — as well as what patients and their families can do to advocate for an accurate diagnosis and a faster response to brain health concerns. Watch the full video to learn more about what caregivers and people living with dementia should know about diagnosis. If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/ Follow Being Patient: Twitter: / being_patient_ Instagram: / beingpatientvoices Facebook: / beingpatientalzheimers LinkedIn: / being-patient Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category...#Alzheimers #Dementia #BrainTalk #Diagnosis
Writer, advocate, and international speaker Laurie Scherrer joins Being Patient Live Talks to discuss her experience living with early onset Alzheimer’s and FTD. After being diagnosed with early-onset Alzheimer’s and frontotemporal dementia at age 55, Scherrer started the blog Dementia Daze to share her journey and help others through their dementia journey. Writing about her feelings, challenges, symptoms, and experiences on her blog, she encourages people living with dementia and care partners to explore ways to live beyond dementia. Scherrer is a Dementia Action Alliance Board of Directors member and has been featured in the New York Times, AARP, PBC, and the South Africa Sunday Times. Watch the full video to learn more about her experience with early-onset Alzheimer’s and FTD and her work fighting dementia stigma. Read the transcript here: https://www.beingpatient.com/laurie-s... YOUR TRUSTED SOURCE FOR BRAIN HEALTH NEWS AND SCIENCE. Being Patient is an editorially independent media platform publishing journalism about brain health, cognitive science, and neurodegenerative diseases like Alzheimer’s. If you learned something from this talk, find more helpful science reporting, mythbusting, and patient and caregiver stories at beingpatient.com. Follow Being Patient on social: Twitter: / being_patient_ Instagram: / beingpatientvoices Facebook: / beingpatientalzheimers LinkedIn: / being-patient Check out our latest Live Talks with medical experts, scientists, researchers, patients and caregivers here: https://www.beingpatient.com/category...#Alzheimers #Dementia #FTD #EarlyOnsetAlzheimers #PatientPerspective
This video was made possible through sponsorship by Lexeo Therapeutics. Being Patient’s editorial team produced the interview and article, with no review/approval process by the sponsor.
Lexeo Therapeutics: https://www.lexeotx.com/
Pioneering genetic medicine expert and physician Ronald G. Crystal of Cornell University’s Weill Medical College joins Being Patient’s editor in chief Deborah Kan for a discussion on gene therapy in relation to Alzheimer’s disease.
As a pioneer in the field of genetic medicine, he started working in gene therapy in the late 1980s. His work has helped to form the basis for all subsequent work in adenovirus-based gene therapies and vaccines. Crystal has carried out human trials of gene therapy for diseases including cystic fibrosis, cardiac ischemia, cancer and central nervous system disorders, and most recently, he has been working on gene therapies for Alzheimer’s disease: For example, his laboratory developed a gene therapy designed to reduce the high risk of Alzheimer’s associated with the APOE4 genetic variant — aka the “Alzheimer’s gene” — a strategy that is currently in clinical trials.
Crystal is the director of the Belfer Gene Therapy Core Facility and attending physician at the New York-Presbyterian Hospital/Weill Cornell Medical Center, and he chairs the Cornell University Weill Medical College genetic medicine department. He’s also responsible for a number of biomedical patents, and he’s founded multiple gene therapy-focused biotech companies including Lexeo Therapeutics, a New York City-based clinical-stage gene therapy company focused on addressing genetically defined cardiovascular and central nervous system diseases.
In this Live Talk, he’ll share his expert take on the past, present future of the field with regard to neurodegenerative diseases like Alzheimer’s. This Live Talk is sponsored by Lexeo Therapeutics.
YOUR TRUSTED SOURCE FOR BRAIN HEALTH NEWS AND SCIENCE. Being Patient is an editorially independent media platform publishing journalism about brain health, cognitive science, and neurodegenerative diseases like Alzheimer’s. If you learned something from this talk, find more helpful science reporting, mythbusting, and patient and caregiver stories at beingpatient.com.
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Being Patient speaks with Benjamin Bikman, professor of cell biology and physiology at Brigham Young University, about the complex processes of our metabolism, and how metabolic health plays a role in neurodegenerative diseases like Alzheimer’s and our brain health. We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Doctor and New York Times bestselling author Sandeep Jauhar joins Being Patient Live Talks to discuss his latest book, “My Father’s Brain,” in which he shares an account of his father’s journey with Alzheimer’s alongside his own experience coming to understand the disease through caring for his father. Watch the full live talk to learn more about his experience caretaking and writing the book. You can read the writeup of the talk with highlights from the conversation on our website: https://www.beingpatient.com/
Virginia Tech’s Dr. Julia C. Basso joins Being Patient Live Talks to discuss her work studying the body-brain connection through dance, yoga, and meditation. As an assistant professor in the Department of human nutrition, foods, and exercise at Virginia Tech, Basso’s research is focused on the body-brain connection and utilizing the body to boost brain function and physiology. With a background in dance and as a certified yoga instructor, she tells us more about her work as director of the Embodied Brain Laboratory and about the bidirectional relationship between physical movement — like dance and yoga — and the brain. YOUR TRUSTED SOURCE FOR BRAIN HEALTH NEWS AND SCIENCE. Being Patient is an editorially independent media platform publishing journalism about brain health, cognitive science, and neurodegenerative diseases like Alzheimer’s. If you learned something from this talk, find more helpful science reporting, mythbusting, and patient and caregiver stories at beingpatient.com. Follow Being Patient on Social: Twitter: https://twitter.com/Being_Patient_ Instagram: https://www.instagram.com/beingpatientvoices/ Facebook: https://www.facebook.com/beingpatientalzheimers LinkedIn: https://www.linkedin.com/company/being-patient
Dr. Valter Longo of the University of Southern California returns to Live Talks to discuss his research on fasting and brain health. In his previous Live Talk with Being Patient, Longo discussed how fasting could be the most potent way to activate rejuvenation processes in the body and lower the risk of disease. Longo is internationally recognized as a leader in the field of aging studies and related diseases. His discoveries include some of the major genetic pathways that regulate aging and life-threatening diseases and the identification of a genetic mutation that protects men from several common diseases. He has pioneered the studies of prolonged fasting and fasting mimicking diet and discovered their effect on multi-system stem cell activation and regeneration, leading to clinical trials on cancer, Alzheimer’s disease, diabetes, cardiovascular disease and autoimmunities. His book, The Longevity Diet, is an international bestseller, translated in over 15 languages and sold in more than 20 countries around the globe.
Teepa Snow, MS, OTR/L, FAOTA is an Occupational Therapist with over 40 years of clinical and academic experience. Her life’s mission is to shed a positive light on dementia, which is why she founded the GEMS State Model for understanding the progression of dementia and the Positive Approach® training strategies. Her company, Positive Approach to Care (PAC) provides online and in-person education and products to support those living with brain change.
The Amazing Grace Chorus is a Milwaukee-based community chorus organized by the Wisconsin Alzheimer’s Institute. Through artistic musical expression, social engagement, and access to resources, the program seeks to improve the quality of life of individuals and their care partners and focuses on stigma reduction in the community.
The chorus will be celebrating its eight year anniversary and kicking off its 2023 spring season “Renew, rebirth, revive!” sessions this coming Saturday, February 18th. Sessions then run every Saturday until May 6, 2023. Register for the talk to learn all about this chorus and its impact on the Milwaukee community.
On Friday, February 3rd 11:00 a.m. PT/2:00 p.m. ET USC quantitative neuroscientist, gerontologist, and biomedical engineer Dr. Andrei Irimia joins Being Patient Live Talks to discuss his research on brain aging and AI technology. Irimia’s research uses computational biology approaches and multimodal imaging to study brain aging in health and disease. In his latest research, USC researchers developed an AI model to accurately capture cognitive decline by measuring how fast the brain is aging. In a conversation with Being Patient EIC Deborah Kan, he’ll share insight into the latest findings from this research, including key differences between males and females. He’ll also discuss how different areas of the brain age — and how this innovative AI model could help us learn more about a wide range of brain health concerns, including Alzheimer’s.
Check out our interactive guides:
https://bit.ly/3Y8qjpx
Dr. Valter Longo of the University of Southern California returns to Live Talks to discuss his research on fasting and brain health. In his previous Live Talk with Being Patient, Longo discussed how fasting could be the most potent way to activate rejuvenation processes in the body and lower the risk of disease. Longo is internationally recognized as a leader in the field of aging studies and related diseases. His discoveries include some of the major genetic pathways that regulate aging and life-threatening diseases and the identification of a genetic mutation that protects men from several common diseases. He has pioneered the studies of prolonged fasting and fasting mimicking diet and discovered their effect on multi-system stem cell activation and regeneration, leading to clinical trials on cancer, Alzheimer’s disease, diabetes, cardiovascular disease and autoimmunities. His book, The Longevity Diet, is an international bestseller, translated in over 15 languages and sold in more than 20 countries around the globe.
Check out our interactive guide here:
https://bit.ly/3Y8qjpx
Chopp, a widely published author, editor, and academic, is currently the Chancellor Emerita of the University of Denver and the former President of both Colgate University and Swarthmore College. She was diagnosed with Alzheimer’s in 2019, and over the past few years, has become an accomplished painter. Her upcoming book, Art, Spirit, Body: Ways to Live While Dying from Alzheimer’s, is an inspirational memoir and guide on how to live well in the early stages of Alzheimer’s Disease. Chopp is a founding member of Voices of Alzheimer’s and a board member of the Colorado Alzheimer’s Association. She is also an avid hiker, reader, and dog lover. In the talk, Chopp will share her unconventional experience with an Alzheimer’s diagnosis and the role advocacy has come to play in her life. She’ll also share insights on the lifestyle and prevention measures related to Alzheimer’s that play a prominent role in her upcoming book.
Download our free interactive guides now:
https://bit.ly/3Y8qjpx
Being Patient speaks with C-Suite business and biotech leader Wendy Nelson, PhD, about her discovery that she carries two copies of Alzheimer’s genetic biomarker APOE4, a gene variant associated with heightened Alzheimer’s risk, and the way this revelation has changed the way she thinks about brain health.
Nelson is currently the chief business officer for a strategic advisory company in the life sciences space and has 25 years of business development, project management, operational, and R&D experience in biotechnology and large pharmaceutical companies, as well as in global CROs. She is also president and founder of the Boston Biotech Forum. She’s an inventor on multiple patents and patent applications and has authored a number of scientific publications.
When Gordon Van Slyke, 75, decided to participate in the phase drug trials for Eisai and Biogen’s new monoclonal antibody drug Leqembi (lecanemab), it was his family history with Alzheimer’s that motivated him.
Read more about his story:
https://www.beingpatient.com/lecanemab-leqembi-trial-participant-story/
Michele Hall was diagnosed with early-onset Alzheimer's in her early fifties. Deborah talks to her about the process of her diagnosis and her experience with Aduhelm.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
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Former trial attorney Dale Rivard, 64, shares his story of living fully with a diagnosis of mild cognitive impairment. We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists.
Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Know more about Being Patient: www.beingpatient.com
James Russell, whose daughter Lynne Russell is living with early-onset Alzheimer's, shares his family's story of love, care and resilience. For more about James' blog: https://neverthelessdementiawepersist.com/ We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Being Patient speaks with Chuck McClatchey about the keys for adapting to a diagnosis of Alzheimer's and related dementias, his early symptoms of the disease, and how he has found hope and inspiration as a dementia advocate. We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Neuroscientist Mark Mattson of Johns Hopkins University shares his insights on what we know and don’t know about intermittent fasting’s effects for our brain health.
Being Patient speaks with Dave Iverson, author of the memoir Winter Stars: An Elderly Mother, an Aging Son, and Life’s Final Journey (March 2022), about his experience caring for his mother Adelaide Iverson during her journey with dementia. On Dave's book: https://daveiversonauthor.com/
--------------------------------------------------------------------------------------------------------------- Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
A new documentary The Gerda That Remains chronicles the life of Gerda Saunders, who was diagnosed with cerebral microvascular disease, a precursor of vascular dementia, at the age of 61 in 2011. Being Patient catches up with her and her husband Peter Saunders nearly three years since we first spoke with Gerda.
Read more:
https://www.beingpatient.com/gerda-saunders-peter-dementia/
Patti LaFleur sees her relationship with her mother Linda LaTurner as a partnership. LaFleur cares for her mother full-time, and she describes LaTurner as someone who is always giving back, even if it’s with something as simple as a smile. For LaFleur, 35, looking after her mother is a chance to return the unwavering love and care that LaTurner, 73, gave in raising her. In Being Patient’s LiveTalk series, LaFleur, a former kindergarten teacher, shares her fellowship with LaTurner in journeying through dementia, and her advice for finding joy, support and time for self-care as a caregiver.
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Steph Jagger, author of Everything Left to Remember: My Mother, Our Memories, and a Journey Through the Rocky Mountains (April 2022), discusses her family’s experience with her mother Sheila Jagger’s Alzheimer’s diagnosis in 2015. Reflecting on her road trip with Sheila 11 months after the diagnosis, Steph shares their adventure across three national parks and her guidance on traveling alongside a loved one with dementia. As Steph looks back on the family’s journey thus far, she speaks about grief, the process of letting go and embracing her mother’s reality.
Dennis speaks about his experience as a caregiver for his late wife Nancy, who was diagnosed with early-onset Alzheimer's in 2015, and his advocacy work both during and after his caregiving journey. Inspired to create safe and enjoyable dining experiences for people impacted by dementia, Dennis established the Central Florida Dementia-friendly Dining initiative. As the founder of Nana’s Books Foundation, which aims to educate youth about dementia and other disabilities, he honors Nancy’s legacy, her love of books and her career as a librarian. Nana's Books Foundation: https://www.nanasbooks.org/.
Contact [email protected] for more information and volunteer opportunities. Central Florida Dementia-friendly Dining: https://www.centralfloridadementia-fr...
Keith Moreland, who was diagnosed with Alzheimer's and normal pressure hydrocephalus at the age of 57, speaks about looking beyond the shock and sorrow of his diagnoses, and making the best of the time that remains.
Concetta Tomaino, a pioneer in the field of music therapy, speaks about the science behind music therapy for dementia and other neurological conditions. Tomaino, executive director of the Institute for Music and Neurologic Function (IMNF), collaborated with the late neurologist Oliver Sacks in cofounding the nonprofit organization, and she shares her expert advice on effective music therapy for people living with dementia and their families.
Being Patient speaks with Benjamin Bikman, professor of cell biology and physiology at Brigham Young University, about the complex processes of our metabolism, and how metabolic health plays a role in neurodegenerative diseases like Alzheimer’s and our brain health.
Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Karl Herrup, author of How Not to Study a Disease: The Story of Alzheimer’s (2021) speaks about how the field of Alzheimer’s went down the wrong path in the search for a cure, the consequences of the Food and Drug Administration’s (FDA) approval of Aduhelm, and his vision for a new path in studying Alzheimer’s, aging and dementia. We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Doreen Monks, who was diagnosed with early-onset Alzheimer's at the age of 63 in 2016, speaks about her experience living with the disease and what it means to live a fulfilling — albeit different — life after a diagnosis. We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
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Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
The years Rochelle Long has spent caring for her mother and aunt with Alzheimer’s have turned her into an advocate for Paid Family Leave.
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Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
In our LiveTalk series, Being Patient spoke with Dr. E. Wesley Ely, professor of medicine and critical care at Vanderbilt University Medical Center, about how many patients who survive a stay at the intensive care unit go on to experience symptoms of dementia, mental health issues and physical ailments. Ely’s new book Every Deep-Drawn Breath tells their stories, and his own mission to reclaim the humanity in critical care. For more on what you need to know about being in the ICU: https://www.icudelirium.org/
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Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
In our LiveTalk series, Being Patient spoke with childhood friends Steve Ecclesine and Greg O’Brien about the filmmaking process behind the new documentary Have You Heard About Greg? and O’Brien’s life following his Alzheimer’s diagnosis in 2009.
To watch the documentary's trailer: https://www.youtube.com/watch?v=z9GIa...
For more about the documentary: https://www.hyhag.com/
Neurologist Lenora Higginbotham in Atlanta shares how her grandmother’s Parkinson’s journey inspired her present-day career in neurology.
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Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram: @beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Dementia research specialist Berta Carbajal shares her journey, from the most difficult day of her life to her career of building relationships in the Latino community. Read on: https://www.beingpatient.com/berta-carbajal-community-health-worker-asu/
--------------------------------------------------------------------------------------------------------------- Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient speaks with Scott Rose about his experience caring for his late wife Maureen Patrick-Rose, who was diagnosed with frontotemporal dementia and appendiceal cancer. Rose, author of "We Danced: Our Story of Love and Dementia," shares the couple’s journey of fellowship and enduring love in the face of terminal illness.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
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Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
Being Patient spoke with a panel of speakers about the conscious and unconscious bias in the healthcare system, as well as solutions at the grassroots level for addressing the challenges of accessing care. This panel discussion is produced by Being Patient with support provided by Eisai. Speakers: Arthena Caston: member of the Alzheimer’s Association National Board of Directors who is living with Alzheimer's. Fayron Epps: principal investigator of the Faith Village Research Lab and founder of the Alter program - For more about the Faith Village Research Lab: https://scholarblogs.emory.edu/epps-f...- For more about the Alter program: https://alterdementia.com/ David Williams: co-Founder and CEO of Care3 - For more about Care3: https://www.care3.co/
Being Patient spoke with Patti Davis, daughter of the former U.S. President Ronald Reagan and author of Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's, about the memories she shared with her father and how she grew as person throughout his decade-long journey with Alzheimer's. We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Being Patient speaks with Anthony Copeland-Parker, author of Running All Over the World: Our Race Against Early-Onset Alzheimer’s, about him and his partner Catherine Elizabeth Popp's nomadic lifestyle, their experience of traveling to 82 countries ever since their retirement and the couple’s pursuit of fulfilling their dreams in the face of Alzheimer’s. For more about the couple's story: https://runningwithcat.com/ We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Being Patient speaks with Cindy Weinstein and Bruce Miller, authors of Finding the Right Words: A Story of Literature, Grief and the Brain, about the Alzheimer's diagnosis of Weinstein’s father, and how writing, literature and neurology can enrich our understanding of dementia. To learn more about the book by Weinstein, professor of English at the California Institute of Technology, and Miller, professor of neurology at the University of California San Francisco, visit their website: https://weinsteinandmiller.com/figures/ We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/
Being Patient speaks with Dr. Daniel Potts, neurologist at the Tuscaloosa Veterans Affairs Medical Center, about the artistic talents of his late father, who found watercolor painting as a way to express early memories and life experiences after an Alzheimer's diagnosis. For more information on the nonprofit organization Cognitive Dynamics, visit its website: https://www.cognitivedynamics.org/ For more on the artwork of Dr. Potts' father Lester E. Potts, Jr: https://www.lesterslegacy.com/ For more on Dr. Potts' poetry: https://danielcpotts.wordpress.com/
Being Patient speaks with talk show host Leeza Gibbons about her family's journey with Alzheimer's, and her mission to support caregivers through Leeza's Care Connection, a signature program of the Leeza Gibbons Memory Foundation.
Dr. Michael Geschwind, professor of neurology at the University of California San Francisco Memory and Aging Center, speaks about the symptoms, diagnoses and treatments of rapidly progressive dementias.
Being Patient speaks with Arthena Caston, Mike Belleville, Geri Taylor, who are living with dementia, and Taylor's husband Jim, about the stigmas of the illness and how people can become more attuned to the realities of individuals diagnosed with dementia.
Sandra Kooij, associate professor of psychiatry at Amsterdam University Medical Center, speaks about the symptoms and treatments of ADHD in older adults and how clinicians distinguish the manifestations of the disorder from the signs of dementia.
Being Patient speaks with President and CEO of Cassava Sciences Remi Barbier about the company's development of an investigational Alzheimer's drug called simufilam, and how scientists are diversifying their approach in finding an effective treatment for the disease.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs.
beingpatient.nationbuilder.com/
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Stay connected on social media:
To catch our Brain Talks live, join our Facebook page:
www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram:
@beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site:
www.beingpatient.com/
Being Patient sits down with speech-language pathologist Vicky Fukuhara to discuss the symptoms of language impairment in dementia and how speech therapy may help people cope with their decline in communication abilities.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs.
beingpatient.nationbuilder.com/
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Stay connected on social media:
To catch our Brain Talks live, join our Facebook page:
www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram:
@beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site:
www.beingpatient.com/
People don’t expect that they’ll have to deal with Alzheimer’s in their 50s, but that is the reality for many families with loved ones who received an early-onset Alzheimer’s diagnosis. We speak to Judy Johanson, a clinical research ambassador for Massachusetts Alzheimer’s Disease Research Center at Massachusetts General Hospital. She cared for her late husband Steve after he was diagnosed with early-onset Alzheimer’s at 59 years old. She provides advice for families caring for loved ones with early-onset Alzheimer’s.
Lonni Schicker had spent most of her life being active, and working as a nurse and a teacher. But that all changed when she was diagnosed with Lewy Body Dementia (LBD) and Parkinsonism, which is different from Parkinson's disease.
Too often we misinterpret behaviors and emotions of people with dementia as symptoms of the disease, overlooking their genuine experiences. Being Patient spoke with Dr. Steven Sabat about his research into managing behavioral and psychological symptoms of dementia, and reframing how we view those with the disease.
Read the article here: https://www.beingpatient.com/managing-depression-during-quarantine/
Being Patient spoke with dementia caregiving expert Teepa Snow on what steps caregivers should be taking amid COVID-19 concerns.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. beingpatient.nationbuilder.com/
To catch our Brain Talks live, join our Facebook page: www.facebook.com/beingpatientalzheimers/
For the latest news on dementia research and lifestyle tips, visit our site: www.beingpatient.com/
Being Patient spoke with neurologist Dr. Majid Fotuhi about his work with NeuroGrow's 12-step brain rehabilitation program and how cognitively impaired brains can be rehabilitated and rejuvenated.
You can read the article here:
https://www.beingpatient.com/brain-exercises-improve-cognitive-function-majid-fotuhi/
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. beingpatient.nationbuilder.com/
To catch our Brain Talks live, join our Facebook page: www.facebook.com/beingpatientalzheimers/
For the latest news on dementia research and lifestyle tips, visit our site: www.beingpatient.com/
Being Patient spoke with Dr. Erin Zahradnik about palliative care and improving caregiver interactions, as well as resources available following a dementia diagnosis.
We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs.
beingpatient.nationbuilder.com/
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Stay connected on social media:
To catch our Brain Talks live, join our Facebook page:
www.facebook.com/beingpatient...
To learn more about us, follow us on Instagram:
@beingpatientvoices
For the latest news on dementia research and lifestyle tips, visit our site:
www.beingpatient.com/
En liten tjänst av I'm With Friends. Finns även på engelska.