Miller-Dieker syndrome and celebrating the life of Lily, with Priyanka Saha

When Priyanka Saha attended her final pregnancy scan, she was told that her baby wouldn’t live very long. Lily was diagnosed with Miller Dieker Syndrome - a rare disorder that causes the outer part of a child's brain (the cerebral cortex) to be smooth causing severe developmental issues. Despite the heart-wrenching prognosis and knowing that Lily only had a limited time on earth, Priyanka and her husband made it their mission to make every day special. 

LINKS 

https://www.instagram.com/the_lilyflower/ 

https://lilycalvert.com/  

https://www.vsk.org.au/  

https://www.instagram.com/veryspecialkids/?hl=en 

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