"Nothing to Lose": Patients Fight to Be Heard

Today we have two powerful stories. Each one is as different as the disease that it’s about. Yet there is a common thread: patients want and need to be heard. You will hear from a mom who will do whatever it takes to save her son’s life.  And you will learn about a young woman who is fighting for herself and her underserved patient community.  

Guests:

Amber Freed, SLC6A1 Connect

Melodie Blackwell, COCCI