Living with Cardiac AL Amyloidosis, a personal journey from Michael Bond, Galway native, retired teacher and renowned Ex- Offaly hurling manager

In this podcast, legendary hurling manager Michael Bond, shares his experience of living for a number of years with cardiac AL amyloidosis. Chatting with our host MT, Michael outlines his previous cardiac health, and how he initially attributed his symptoms including shortness of breath to his underlying condition.

Michael talks about the importance of advocating for one’s own health and pushing for further investigations when symptoms persist. He candidly shares his journey from diagnosis to treatment, and his visits to the Royal Free AL Amyloidosis centre, Uk.

He explains how the treatment he received has been effective in controlling his condition, and improving his quality of life with some minor adaptations. His positive attitude is uplifting and inspiring. It’s clear his sporting career, ‘can do attitude’ and fighting spirit have helped him navigate his diagnosis, treatments and assisted him to overcome challenges faced, including weight loss and losing his identity.  

Michael has used fundraising as a powerful tool to raise awareness of AL Amyloidosis and a way to give back to the Amyloidosis centre, Uk. Michael speaks of the need for greater awareness of this rare condition and his donation to MMI to support their efforts in promoting further support and information to patients living with AL Amyloidosis. He stresses that being informed is so important to living well. Of course, no conversation with Michael could be complete without discussing his knowledge of hurling and predications for the future. This engaging and encouraging podcast provides great encouragement for any patient or family affected by this rare condition.

We hope you find this podcast helpful. 

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This podcast has been produced by Fuzion Communications.