Digital Health Data Privacy with the Future of Privacy Forum’s Jordan Wrigley

Over the past 20 years, there's been tremendous growth in technology for digital health. From healthcare management software, medical devices, to fitness trackers, there's more health data available about an individual than at any other time.

However, with an increase in data, there's also been an increase in considerations for the secure management of this data. Privacy regulations haven't been able to keep up with the explosion of technological growth.

Jordan Wrigley, Researcher for Health and Wellness at the Future of Privacy Forum, joins the show to share her expertise about digital health data privacy. Sean and Jordan discuss the goals and activities of the Future of Privacy Forum, how culture impacts how an individual thinks about health-related privacy, the shift in concern over health data privacy, and what a company needs to be thinking about when building products that collect or process digital health data.

Topics:

• Who are you? What’s your educational background, work history, and how you ended up where you are today?
• What is the Future of Privacy Forum?
• What are the goals, activities, and focus areas of the organization?
• How do people and companies typically engage the FPF?
• What is your role and area of expertise at the FPF?
• Do you think there’s been a shift in privacy sensitivity with regards to medical and health data in the past few years and if so, what has led to the growing concern and focus?
• What’s considered health-related data when it comes to privacy regulations?
• What types of tools/techniques should a company be considering to improve their privacy and security posture when dealing with health data?
• Let's say I'm a gym own. What do I need to know about my responsibilities in terms of privacy when it comes to the collection and management of health-related data?
• Where is the line between a fitness tracker and an actual medical device? And should these trackers have more regulatory demands placed on them?
• What are the regulatory requirements for an actual medical device?
• If I’m processing clinical trial data and I want to be able to perform analytics on the data and produce sharable reports, what do I need to know about maintaining privacy in this scenario?
• How does developing for children impact the types of privacy and security considerations that a company needs to be thinking about?
• What are your thoughts on the future of privacy? Are there tools, technologies, or trends that you’re excited about?
• What are some of the big challenges in privacy that we need to solve?

Resources:

• Future of Privacy Forum