**Trigger Warning**
Naman Julka-Anderson and Jo McNamara catch up with Helen Haar and Catarina Correia Velosa Da Veiga.
Discussion about Helen’s diagnosis, her teenage and young adult campaiging, late effects and Catarina’s research, the importance of the patient voice in research and how hearing Helen’s story has changed how she views cancer research.
To use this podcast as CPD, look at these reflection points:
1) read about the symptoms of Non-Hodgkin’s lymphoma: https://www.cancerresearchuk.org/about-cancer/non-hodgkin-lymphoma/symptoms
2) consider how we can improve the experiences of young people who require radiotherapy treatment.
3) consider the long term effects that radiotherapy can have on young people.
4) consider on how you, as a professional, can acknowledge how young people living with and beyond cancer would like to be referred as.
5) complete the evaluation: https://docs.google.com/forms/d/e/1FAIpQLSd2bJk5aVUFPXp7wgcZJY5jxF6voInOH2VGomUtgDLzxoJQIQ/viewform.
Complete this form for your accredited digital badge: https://bit.ly/3GbtR1X.
Links from podcast:
Beacon Bursary: https://www.ucl.ac.uk/culture/projects/beacon-bursaries
Cancer Research UK Rad Net: https://www.cancerresearchuk.org/funding-for-researchers/our-research-infrastructure/radnet-our-radiation-research-network
Trekstock Charity: https://www.trekstock.com
Teenage Cancer Trust cancer support for patients: https://www.teenagecancertrust.org/information-about-cancer/cancer-support-parents
Macmillan Cancer Support looking after someone with cancer: https://www.macmillan.org.uk/cancer-information-and-support/supporting-someone/looking-after-someone-with-cancer
Society of Radiographers Late Effects Special Interest Group: https://www.sor.org/about/get-involved/special-interest-groups/radiotherapy-late-effect-sig
Catarina’s research publications: https://profiles.ucl.ac.uk/57293-catarina-isabel-correia-veloso-da-veiga/publications
Radiation Reveal: https://crukradnet.colcc.ac.uk/2022/04/06/radiation-reveal/
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