Ep. 98: From the Inside Out- My husband's journey with a neuroimmune condition

I invited an adult with a neuroimmune condition onto the podcast to discuss his experience and provide listeners with some insight on what children with PANS/PANDAS and other neuroimmune conditions may not have the words to describe. This special guest happens to be my husband, Ed. This episode is part 2 in a 3 part series. Next week, you'll hear me discuss my experience as a caregiver.

In this episode, you’ll learn:

• What a child with a vulnerable nervous system may long for you to know, but doesn't have the ability to tell you verbally
• What kind of caregiver response really helps (sometimes) 
• How the Dysregulation - Shame Cycle feels

Read a summary or the full transcript on my website: https://robyngobbel.com/neuroimmuneinsideout

Resources
PANDAS physician network https://www.pandasppn.org/
Neuroimmune Foundation https://neuroimmune.org/
ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies https://aspire.care/
Monster in Me Documentary: https://www.themonsterinsideme.com/

Over on my website you can find:
Masterclass and eBook on What Behavior Really Is (FREE)
eBook on The Brilliance of Attachment (FREE)
Ongoing support, connection, and co-regulation for struggling parents: The Club
Year Long Immersive & Holistic Training Program for Parenting Professionals: Being With

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F R E E LIVE Webinar!!
Focus on the Nervous System to Change Behavior
1 hour webinar, eBook, and printables- all free!
February 4 @ 10am eastern and 8pm eastern
Can't make it live? Register for one anyone and you'll receive the recordings and all the extras.

Go to RobynGobbel.com/webinar to sign up!
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Want to pick Robyn's brain, hang out with her in Zoom meetings and a forum you can access in an app? Come join us in The Club!

Are you a professional who wants to support families of kids with big, baffling behaviors? Then Being With is for you!

Just need a little extra help? Head to RobynGobbel.com/FreeResources