Episode 25 - Amanda's Story - Braving Batten Disease with Hope

Welcome to the finale of Season 1!

Today, I have the joy of bringing you my conversation with Amanda Beedle. Amanda shares about her two beautiful daughters, Annabelle and Abigail, both of whom have Batten Disease, a rare disorder that requires a visit every two weeks to what Amanda has termed "the brain spa." I left this interview with such an appreciation for Amanda's strength, hope, and faith. I feel like this was the perfect closing episode for Season 1 - I look forward to seeing you all in September!

Follow their journey at: https://www.facebook.com/BeedlesBravingBatten

Check out their webpage: https://p2p.charityengine.net/Beedles-Braving-Batten

You can find my book, Learning to Breathe, at:

https://www.amazon.com/Learning-Breathe-story-micropreemies-defied-ebook/dp/B083S6R3CN/ref=sr_1_1?crid=RUDD8XIP3YUT&keywords=learning+to+breathe+heather+evans&qid=1675870004&sprefix=learning+to+breathe+heather+evans%2Caps%2C101&sr=8-1

You can find my book, The NICU Mama Survival Guide, at:

https://www.amazon.com/NICU-Mama-Survival-Guide-Post-Partum/dp/B09MGJ7RSX/ref=sr_1_1?crid=24Q2C9CKTALJ2&keywords=the+nicu+mama+survival+guide&qid=1675870037&sprefix=the+nicu+mama+survival+guide%2Caps%2C113&sr=8-1

Have a great week!

Heather