Episode 58 - Ashley's Story - Sanfilippo Syndrome & Making the Most of Every Day

Today, I'm happy to share my interview with Ashley, whose 8-year-old daughter, Sadie, has been diagnosed with a rare disease called Sanfilippo Syndrome. Sanfilippo, as described by Ashley, is similar to dementia or Alzheimer's, but in children. In this episode, you will hear about: - What is Sanfilippo and how does it present in children - What has been Sadie's journey in terms of diagnosis, symptoms, and the involvement in a clinical trial - How Ashley makes sure that Sadie's life is full of travel and adventure This one is SO full of great lessons for all of us - the way Ashley approaches each day with Sadie is something we should all do! To learn more about Ashley and Sadie, you can find them on IG at @savingsadierae You can help at: https://curesanfilippofoundation.org/how-to-help/