Episode 66 - Josie's Story - Raising a Daughter with Prader-Willi Syndrome

I had the amazing opportunity to chat with Josie about her motherhood experience. Her daughter, Journey, is 8 years old and has a rare disease called Prader-Willi syndrome. Among other symptoms, this syndrome affects Journey in that she never feels full which has led her mom and family to have to make very specific rules around mealtimes and food. Josie shares about:

- Getting her daughter's diagnosis

- Modifications she has had to make as a mom around food

- The challenges of school and learning about IEP's/504's

- The importance of inclusion and how she and her husband have created a football and cheer program that focuses on including all kids who want to join, despite any special needs or financial status