This episode is for all the folks who are, for whatever reason, familiar with chronic illness, rare disease and/or autoimmune disorder. The Network was inspired by my work with clients living with chronic illness and rare diseases such as Sjogren’s disease, Ehlers-Danlos Syndrome, POTS, PCOS, and MCAS, specifically.
RCCX Theory is a theory proposed by Dr. Sharon Meglathery that may explain overlapping syndromes associated with chronic illness. This mutation creates a stress vulnerability.
In other words, a brain wired for danger and a body primed for stress.
Co-inherited gene mutations of the RCCX module lead to overlapping “rare” genetic diseases and syndromes in families and individuals. This have catastrophic consequences in settings of severe acute, chronic, or prolonged stress, resulting in medical and/or psychiatric illness.
Listeners who may find this episode particularly validating may have experience or be familiar with:
• Post-Covid / Long Covid syndrome
• Postural Orthostatic Tachycardia Syndrome (POTS)
• Mast Cell Activation Syndrome (MCAS)
• Ehlers-Danlos Syndrome
• Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME)
• Sjogren's Syndrome
• Lyme
• Vasovagal Syncope
• Small Intestinal Bacterial Overgrowth (SIBO)
• Inflammatory Bowel Syndrome (IBS) including Crohn's and colitis
• Fibromyaligia
• Rheumatoid Arthritis
• Chronic Inflammatory Response Syndrome (CIRS)
• Multiple Chemical/Mold/Electrical Sensitivities
• Chronic Pain
• other dysfunction involving the nervous system including gut biome
Deep gratitude to Dr.Meglathery for her research on the RCCX module. We hope her work is carried forward by fellow scientists and advocates.
Notes
https://www.rccxandillness.com
Facebook group: https://www.facebook.com/rccxandchronicillness
https://www.gro-gifted.org/rccx-theory-and-giftedness-a-promising-new-line-of-research/
https://www.healthrising.org/blog/2018/08/09/rccx-chronic-fatigue-fibromyalgia-eds-pots/
https://me-pedia.org/wiki/RCCX_Genetic_Module_Theory
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