It’s hard to put a finger on what has been the hardest part of Kimball’s medical journey. Watching him suffer will likely remain number one on that list forever. But a close second is the isolation. Having a child with disabilities is so very isolating. With his arrival, it became difficult to relate with my family and friends. We were suddenly worlds apart. And I know I’m not the only one! I’ve heard many parents talk about how lonely the journey can be.
But one of my favorite parts of the journey goes right along with the isolation from the world at large and that is connection! Because of being thrust into this “other” category, the deep and often instantaneous connection I’ve experienced with other parents in the same boat has been incredible.
In this solo episode, I share my constant battle between the two ends of the same stick and the affect it had on my journey.
Links:
Join We Are Brave Together community here: https://www.wearebravetogether.com/
Find me on Instagram here: https://www.instagram.com/the_rare_life/
Join the Facebook group for parents of rare here: https://www.facebook.com/groups/parentsofrare