The Lucky Few

Today, we're thrilled to chat with Matthew Von Der Ahe, known for his roles in 'Champions' and other films. Joined by his brother Tommy, they reminisce about childhood, explore their evolving adult relationship, and discuss maintaining their strong bond despite living apart. Matthew, an actor recognized for his work in 'The Secret Lives of Dorks' and 'Code Black,' is also active in the arts community and charity initiatives. Meanwhile, Tommy, a robotics enthusiast and former Loyola High School rower, now lives in Dallas, staying close with Matthew through FaceTime and visits. Their supportive dynamic shines as they share stories of family (18 cousins), pulling pranks, funny viral posts, sibling love, and mutual encouragement - they are each other's HYPE MAN. This episode celebrates their unique sibling bond and shared understanding of what it means to shift the narrative through enduring family ties. It's a good one, friends.  

SHOW NOTES

• Listen to Episode 210 with Matt and Madison Tevlin celebrating the release of their film ‘Champions’ 

• Follow Matthew on Instagram

• Check out Matthew’s IMDB

• Go watch ‘Champions’ today!

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources.⁠ Become an essential part of The Lucky Few movement today! ⁠

DISCOUNT CODE

Friends, grab your narrative shifting gear over on⁠ The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Today, we're chatting about the mysterious and challenging world of Down Syndrome Regression Disorder (DSRD). This condition has left many parents searching for answers as they witness profound changes in their children. Joining us are two leading experts, Dr. Jonathan Santoro and Dr. Eileen Quinn, who will share their insights and experiences from the frontlines of diagnosing and treating DSRD. Dr. Santoro serves as the Director of Neuroimmunology and Demyelinating Disorders Program and Director of Research for the Neurologic Institute at Children’s Hospital Los Angeles. He also has clinical research expertise in DSRD. Dr. Quinn serves as the Medical Director of the Down Syndrome Clinic at ProMedica Ebeid Children’s Hospital in Toledo. Dr. Quinn is also the mother of four perfect daughters, the youngest of whom, Sara, has Down syndrome. They’re helping us understand the symptoms, treatment options, and the ongoing fight to understand this perplexing disorder. Friends, we’re glad to bring this important conversation to everyone’s attention.

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SHOW NOTES

• Read The Washington Post article featuring Dr. Santoro and Dr. Quinn

• Regression in Down Syndrome Facebook group

• Information on Down Syndrome Regression Disorder Facebook Group

• Additional resources from the National Down Syndrome Society (NDSS)

• Learn more about DSRD

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Today, we’re chatting with the creative minds behind Dance Happy Designs! Emily Scott is here to chat with us about the power of inclusive entrepreneurship, friendship, and creativity and share some of co-founder Julia’s thoughts on their friendship and partnership, plus what her favorite design is! Emily shares their experiences creating high-quality, amazing designs and fostering an inclusive movement that centers and honors people with disabilities. Hear about their achievements, including being named a Tory Burch Foundation fellow, securing deals with Nordstrom and Aerie, and their commitment to collaborating with the Down Syndrome community. Plus, we hear about some new products AND they share an exclusive discount with our listeners!

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SHOW NOTES

Exclusive 21% off Dance Happy Designs for our listeners if you use THELUCKYFEW

• Shop Dance Happy Designs

• Shop the Dance Happy Designs and NDSS collab 

• Shop Julia’s Favorite Design Incana

Follow Dance Happy Designs on Instagram and Facebook

Learn more about The Tory Burch Foundation Fellowship 

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

We’ve been so grateful to have had the opportunity to collaborate with National Down Syndrome Society (NDSS) over the last few years. Today, we’re chatting with Kandi Pickard, the President & CEO of NDSS, and celebrating their 45th Anniversary coming up on June 20th! Kandi is sharing the organization's journey from a support group that has grown into a major policy and advocacy organization, she shares her experience from becoming a volunteer to taking over as President & CEO, and what the future holds for NDSS! We chat about the honor of learning from and advocating alongside self-advocates, and the commitment NDSS has to representing the beauty and diversity of the Down syndrome community. We’re so grateful for the vital work they do to support and create opportunities for the community, tune in and be inspired by Kandi’s dedication and vision for the future of NDSS!

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SHOW NOTES

• Learn more about the National Down Syndrome Society (NDSS)

• Find NDSS on Facebook, Instagram, X, Tik Tok, YouTube, and LinkedIn

• Learn more about the history of NDSS

• Learn more about this year’s 30th NYC Buddy Walk

• Learn more about the NDSS Policy Program

• Learn more about ABLE Accounts

• Learn more about this year’s Adult Summit

• Learn more about the first Barbie with Down syndrome

• Download the New And Expectant Parent’s Guide

Check out our past episodes with Kayla McKeon & Charlotte Woodward:

• 17. Self Advocacy - Down Syndrome in DC with Kayla McKeon!

• 92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing

• 160. Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!)

• 204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, & Charlotte Woodward

• Check out our episode from last year’s Buddy Walk: 225. NYC Buddy Walk Highlights

• Learn more about the National Down Syndrome Congress (NDSC)

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Join us for a special Father’s Day episode featuring the dynamic father-son duo, David and Andrew Olshine! They share their inspiring journey of writing and publishing the book Fearless As A Honey Badger, Brave Like A Wolverine. Learn about the lessons they've learned, the message of hope and resilience they aim to share with the world, and how Andrew’s remarkable recovery from Guillain-Barré syndrome inspired him to write the book. They also discuss the inspiration behind the powerful quotes included in the book, drawn from movies, Eleanor Roosevelt, Nelson Mandela, and Bible verses. Enjoy an excerpt read by Andrew himself and hear about his plans for his next book. This is a fun and heartfelt episode you don’t want to miss!

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SHOW NOTES

• Get your copy of Fearless As A Honey Badger, Brave Like A Wolverine

• Follow David & Andrew on Instagram

• Get your copy of David’s book Mystery Of Silence

• Check out Mercedes’ recommendation: All Creation Waits

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Cheers to making it through another school year! Join us as we share our experiences, celebrate the successes, and learn from the challenges of the 2023-2024 school year. Discussing everything from what types of supports and settings worked for our kids, to the injustices in our education system and the reality of our kids still leading the way in 2024. We hope you’ll join us as we reflect on the good and the hard another school year has brought. Remember friends, we’re cheering you on every step of the way!

SHOW NOTES

Listen to our 2022 reflections:

• 209. End of School Year Reflections 

Listen to our episodes with Dr. Vaish Sarathy:

• 80. Assuming Intelligence in Our Kids w/Down Syndrome, ft. Dr. Sarathy

• 220. Back To School Jumpstart w/Dr. Vaish Sarathy

Hear more about Macy’s journey this year:

• 243. Still, The Best We Can (w/Heather & Josh Avis)

Listen to Micha’s Podcast The Slow Way

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code LuckyDad for 21% off (through 6/16)!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we know there are so many ways to learn, join us today as Mercedes chats with fellow homeschool mama Rachel Prescott about what it's like to homeschool kiddos with (and without!)  Down syndrome. Mercedes has homeschooled her daughter Sunflower who has Down syndrome and her three boys for over five years now, Rachel who has twin six-year-old daughters Nettie and Lottie who have Down syndrome, and two boys ages 8 and 10. They share what an average homeschool day looks like for them, the benefits they’ve seen for their families, resources they’ve found helpful, and so much more! Learn how co-ops, standardized testing, and therapies have played a role in their journeys so far, and what kinds of activities their kids have participated in. Whether you’re considering homeschooling or are just curious about what a day in the life of a homeschool mama looks like, this episode is one you don’t want to miss!

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SHOW NOTES

• Follow Rachel on Instagram
  

• Learn more about Handwriting Without Tears

• 
  Learn more about The Dog Man Series

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code LUCKY for 21% off (through 5/31)!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we’re so excited to be joined by Mrs. Brown today, you’ve heard us mention her many times over the years! She has developed a successful and innovative program that teaches reading and other academic skills to learners ages three to adult. We learned about her passion and gift for teaching individuals with Down syndrome in 2018 and had her on the show during our first season. Today, she’s back to talk about her program, “So Happy To Learn,” to share memorable teaching moments, give us tips and strategies for every learner, and so much more! We know we’re headed into summer breaks and vacations, today our episode is packed with tips for summer learning and lifelong learners. As Mrs. Brown says, “Learning is continual!”

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SHOW NOTES

Learn more about Mrs. Brown’s So Happy To Learn At Home program

Check out our last episode with Mrs. Brown in 2018!:

12. Education - So Happy to Learn with Mrs. Terry Brown

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code LUCKY for 21% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, today we have Manni and Reuben Coe, two remarkable brothers from the UK, who are here to share their deeply moving journey and new book, brother. do. you. love. me. Their story is one of extraordinary resilience, heartwarming repair, and the profound rediscovery of brotherly love. These magical brothers remind us of the power of love and resilience. Their story is not just about overcoming obstacles; it's about finding strength in vulnerability, embracing hope in the face of adversity, and discovering the true meaning of brotherhood. This book and interview truly filled our hearts to the brim, grab a few tissues, this is an episode you don’t want to miss! --- SHOW NOTES Learn more about brother. do. you. love. me. Order your copy now available in the US on Amazon, Barnes & Noble, find a local retailer JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  THANK YOU TO OUR SPONSOR: Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information! LET’S CHAT Email [email protected] with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we put, “I’m A Really Good Mom” on a t-shirt because we know moms doubt this truth about themselves daily. Today in honor of Mother’s Day we’re celebrating the importance of community, friendship, and advocacy with our friends Kelli Caughman and Crystal Lotterberry! Kelli & Crystal are the founders of the Black Down Syndrome Association and they’re here to have an unfiltered conversation about the messy and beautiful parts of being a mama! We're chatting about how Down syndrome has influenced our perspective on life and motherhood, our advice for those feeling overwhelmed, what we shouldn’t have worried about (or if we ever worried), and so much more! Being a mama is the hardest and best, we want you to know you’re doing a good job. Now say it with us, “I’m a really good Mom!”

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SHOW NOTES

• Follow Black Down Syndrome Association (BDSA) on Instagram and Facebook

• Learn more about the Black Down Syndrome Association 

• Join the Black Down Syndrome Association Facebook Family Group
  

More episodes with our friends from BDSA!:

• 58. A Conversation About Race & Down Syndrome w/Mercedes Lara & Kelli Caughman 

• 195. Connecting with the Black Down Syndrome Association (ft. Kelli Caughman & Crystal Lotterberry)

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

MICHA’S NEW BOOK

Pre-order Micha’s new book Blessed Are The Rest Of Us coming April 9, 2024! (All pre-order’s purchased through Baker Book House receive a signed copy with a lucky few temporary tattoo!)

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we’re so excited to have barber Vernon Jackson on the show today! In his barbershop and salon in Ohio, haircuts are more than just a service—they're an act of love and understanding. Through his viral program, The Gifted Event, Vernon provides free haircuts to children with disabilities, offering them patience, empathy, and a sense of belonging. A lifelong creative with a passion for serving others, he’s committed to seeing The Gifted Event continue to expand across the country and world, making barbershops and salons a safe and inclusive space for everyone. More than just a barber, Vernon is shaping a future where everyone feels embraced and accepted, one haircut at a time.

NOTE: This interview contains some adult language.

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SHOW NOTES

• Follow Vernon Jackson on Instagram

• Follow Vernon Jackson on TikTok

• Follow Vernon Jackson on Facebook

• Follow Vernon Jackson on Youtube

• Learn more about The Gifted Event

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

DISCOUNT CODE

Mother's Day is coming! You know this. But did you know we have a “I am really good mom shirt”?! Just for Mother's Day, we are offering a 21% discount on all orders until Mother's Day. Head over to theluckyfew.co and use code: LUCKYMAMA 

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

254. The Next Step: Navigating Healthcare Transitions for Individuals with Down Syndrome (w/ Dr. Emily Johnson)

Today, we’re chatting about navigating healthcare transitions with Dr. Emily Johnson, a dedicated advocate and physician specializing in the healthcare needs of individuals with Down syndrome. We discuss the importance of starting the transition process early, the challenges families may face, and the key considerations for a successful transition. Dr. Johnson also shares her personal experience as a mother and sister, to individuals with Down syndrome, and how her personal experiences have shaped her career as a physician. Friends, this episode will leave you with valuable insights that left us confident in starting conversations with our kid's providers that will set them up for successful transitions of care. This is an episode you’re going to want to bookmark!

SHOW NOTES

• Global Down Syndrome Foundation medical care guidelines 
• More information on the National Down Syndrome Adoption Network

Our episode with DSDAN:

• 45. Adoption & Down Syndrome w/Stephanie Thompson from the NDSAN

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!

47. Planning for the Future w/Phillip Clark from Enable SNP

191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

DISCOUNT CODE

Mother's Day is coming! You know this. But did you know we have a “I am really good mom shirt”?! Just for Mother's Day, we are offering a 21% discount on all orders until Mother's Day. Head over to theluckyfew.co and use code: LUCKYMAMA 

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

What does it mean to feel “lucky” to have a child with Down syndrome? We’re having a candid conversation about the evolving meaning of “lucky” within our community and personal journeys. Through the challenges and the joys, we know that things like toxic positivity and social media can leave us struggling to feel “lucky.” We’re sharing our thoughts, experiences, and some feedback from one of Heather’s social media posts on what “lucky” in The Lucky Few has come to mean. Join the conversation and share your experiences, perspectives, and advice on reframing the narrative around parenting a child with Down syndrome. Whether you’re feeling “lucky” or not, this episode offers a space for honesty and support. 

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SHOW NOTES

• Learn more about Kate Bowler

• Study “Self Perceptions For People With Down syndrome” mentioned by Heather

Other episodes to check out:

• 95. What Are You Thankful For?
• 117. Discussing "Dignity Beyond Accomplishment," An Article by Justin Hawkins (ft. author, Justin Hawkins)
• 138. What do you wish you knew when you got your child's diagnosis?
• 151. Finding People That Don't Feel Sorry For You (ft. Jo Lopez)

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

MICHA’S NEW BOOK

Pre-order Micha’s new book Blessed Are The Rest Of Us coming April 9, 2024! (All pre-order’s purchased through Baker Book House receive a signed copy with a lucky few temporary tattoo!)

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

We’re so excited to have Phillip Clark back on the show, he’s the founder of ENABLE Special Needs Planning and is here to chat with us about involving siblings in the guardianship and decision-making process. Phillip shares the importance of having open conversations early on with siblings about guardianship and gives advice about getting the conversation started. He dives into the differences between guardianship and supported decision-making and the importance of personalizing decisions for each individual’s needs. Phillip shares his journey and experience with his sister, Sarah, who has Down syndrome, emphasizing how beneficial it has been for his family to have a plan, open communication, and involvement of the entire family in the process of planning for Sarah’s future. Friends, we know there are so many what-ifs to the future of having a loved one with Down syndrome, this episode gives valuable tips and resources on approaching a plan for the future.

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SHOW NOTES

Previous episodes with Phillip Clark:

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

• Learn more about Enable Special Needs Planning

• Enable Special Needs Planning Facebook Group

• National Down Syndrome Society (NDSS) Sibling Resources

More episodes to check out:

• 214. Guardianship, Conservatorship, & Supportive Decision-Making

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

MICHA’S NEW BOOK

Pre-order Micha’s new book Blessed Are The Rest Of Us coming April 9, 2024! (All pre-orders purchased through Baker Book House receive a signed copy with a lucky few temporary tattoo!)

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

You know and love her as the bubbly blonde that breaks into song on nearly every episode, today our girl Micha Boyett isn’t just The Lucky Few Podcast host, she’s our guest!! Join us in celebrating her new book Blessed Are The Rest Of Us (available April 9th!)! We’re chatting about her journey of writing this book, and how she chose to write more than just a memoir. What does it mean to be “blessed”? What makes us worthy? What makes life good? Micha shares how her journey with Ace’s Down syndrome and Autism diagnosis made her see society’s obsession with success for what it actually is: fear of vulnerability. In finding language to push against society’s intrinsic ableism she found the connection in the Beatitudes, an ancient sacred text. She explores the concept of worthiness and the good life inviting us to reconsider the meaning of blessing and envision a world where everyone’s worth is recognized. It’s an honor to celebrate our magnificent friend’s work, this is an episode you don’t want to miss!

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SHOW NOTES

• Learn more about Micha Boyett, and The Slow Way Podcast & Newsletter

• Pre-order Micha’s new book Blessed Are The Rest Of Us coming April 9, 2024! (All pre-order’s purchased through Baker Book House receive a signed copy with a lucky few temporary tatoo!)
  

• Learn more about Nadia Bolz-Weber

• Learn more about Richard Rohr

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we had another hot topic in our group text that we knew we needed to bring on the pod to have with all of you! Today we’re chatting about the February 25th episode of “Saturday Night Live” with a guest host who used his niece and her Down syndrome diagnosis as a punch line to his set. We’re talking about our reactions and the larger conversation: who has the right to use Down syndrome and disability as a joke or punch line? Join us as we discuss the discomfort when jokes are made for an audience not connected to someone with Down syndrome and whether the laugh is at the expense of the person with the disability. Listen in as we unpack the complexities of comedy, connection, and the importance of shifting narratives.

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SHOW NOTES

• Comedian Shane Gillis opening the February 25, 2024 episode of “Saturday Night Live”

• One of the articles written about the backlash

Learn more about Josh Blue

More episodes to check out:

• 245. Can An Advocate Get It Wrong Sometimes?
• 234. Producing A Diverse, Authentic, & Honoring Netflix Series (w/Down For Love Producer Robyn Paterson)
• 217. The Things People Say
• 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate)
• 186. Our Response to the Ableist Comments on Netflix's "Love Is Blind"
• 169. The Harm in Using People with Disabilities As "Inspiration" in Clickbait Viral Videos

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

MICHA’S NEW BOOK

Pre-order Micha’s new book Blessed Are The Rest Of Us coming April 4, 2024! (All pre-order’s purchased through Baker Book House receive a signed copy with a lucky few temporary tatoo!)

THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

For nearly 250 episodes we’ve had educational, encouraging, and meaningful conversations amplifying voices and shifting narratives for individuals with Down syndrome. Over the last 6 years, we’ve tackled topics on education, health & wellness, accessibility, stereotypes, legal rights, media representation, advocacy, and so much more! We were even recognized with the 2023 Media Award at the National Down Syndrome Congress Convention! We’ve had so many great moments but the best part of this podcast is being part of this one-in-a-million community!

March 8th we got to celebrate LIVE in San Diego, California! It was so special getting to meet our listeners, play some trivia, chat about the many ways we’ve learned, advocated, and celebrated over the last six years, and have a special guest share their good news!! 

On March 14, 2024, we marked our MILLIONTH DOWNLOAD, we’re so grateful to every one of you, for listening, sharing, and being part of The Lucky Few community. We look forward to a million more laughs and reasons to learn, advocate, and celebrate alongside this incredible community. Thanks for your support narrative shifters, cheers to a million more!!!

SHOW NOTES

Trivia Links:

• 17. Self Advocacy - Down Syndrome in DC with Kayla McKeon!

• 92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing

• 204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, & Charlotte Woodward

•  57. Shelley Gottsagen On Her Son Zack Gottsagen's Fame, The Oscars, + More!

• 10. Inclusion - An Educator’s Perspective with Kristin Enriquez Pt. 1

• 85. Is Inclusion Always The Best Option?

• 198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools

• 218. Creating Inclusion For All Learners (w/Tim Villegas) 

  
  

Ways we’ve learned, advocated, and celebrated:

• 26. Owning Your Influence By Using Your Words with Amy Julia Becker

• 88. (Un)learning the Advocacy Language

• 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani

• 117. Discussing "Dignity Beyond Accomplishment," An Article by Justin Hawkins (ft. author, Justin Hawkins)

• 163. What does success mean to you?

• 160. Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!) 

• 217. The Things People Say

• 16. Live From the Dear Mom Conference!

• 225. NYC Buddy Walk Highlights 

• 150. Cole Sibus on Being An Actor w/Down Syndrome, Moving Away From Home, + SO Much More! 

• 227. French Fries, Modeling, & Meeting the Vice President (w/Ronnie "The Fry Guy" and Sister LaTasha)

• 229. Poet, Author, "Levitator of Language" Sid Gosh (w/Mom Dr. Vaish Sarathy) 

  
  

Thank you to our event sponsors and vendors:

• ARCC Center Respite

• Inclusive Education Project

• Functional Nutrition For Kids

• Weaver & Associates

• San Diego Regional Center

• Path-Now

• Resounding Joy 

• Amanda’s Adaptive Martial Arts

• Includ(Ed) San Diego

• Grace Place Art

  
  

Special thanks to our partner:

GiGi’s San Diego

Special thanks to Haven by Communal, Jen Byard, Jen & Addie Jones

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

We’re so excited to welcome feature film executive turned author and disability advocate, Kelley Coleman to the show! Her book Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Support releases TODAY!! Friends, this book is like gold, it provides the kind of support and confidence we all need to navigate and understand the complex systems, services, and supports no matter what diagnosis our kids have. It’s a resource we’ll be looking to for years to come, providing us with helpful questions, checklists, and ways to access services based on your child's individual needs. We celebrate finding friendship and community throughout the disability community, and Kelley shares how the Down syndrome community has embraced her and her son. She even shares how disability rights activist Judy Heumann shared her enthusiasm for a resource like Kelley’s book and emphasized the importance of sharing stories as self-advocates and nondisabled advocates in the disability space. This is a book and conversation we’re so grateful for, this is an episode you don’t want to miss!

---

SHOW NOTES

• Order Kelley’s new book Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Support

• To learn more, visit https://www.kelleycoleman.com/ 

• Follow Kelley on Instagram and Facebook

• Learn more about Judy Heumann’s legacy

JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we’re so excited to have award-winning writer, speaker, podcaster, disability advocate, and Mom of three, Amy Julia Becker, joining us for a third time today! She’s here to chat about what the journey with her daughter Penny has looked like after turning 18 and entering adulthood. She’s been in the process of making decisions about education, employment, guardianship, independent living, and so much more! We chat about navigating new services, and agencies, and Teresa from Social Security. What’s been the decision that has felt like the weightiest part of the transition into adulthood so far. How she’s included Penny in the decision-making process, her thoughts on guardianship, and so much more. Turning 18 brings on a whirlwind of decisions, Amy reflects on how it’s paralleled the early years and shares advice to consider in your child's middle and high school years. This is an episode you not only don’t want to miss, but you’ll want to bookmark and take notes on!!

---

SHOW NOTES

• Check out Amy Julia’s post about Penny’s nails

• Instagram: @amyjuliabecker

• Facebook: @amyjuliabeckerwriter

• YouTube Channel

• Threads: @amyjuliabeckerX: @amyjuliabecker

• amyjuliabecker.com 

Our Previous Episodes w/ Amy Julia: 

• 26. Owning Your Influence By Using Your Words with Amy Julia Becker

• 158. Faith, Healing, & Disability, ft. Amy Julia Becker (Mother/Author)

Episode mentioned:

• 214. Guardianship, Conservatorship, & Supportive Decision-Making

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we know that seeing specialists and hearing your child could potentially have cardiac issues after receiving a prenatal diagnosis can all be overwhelming. We also know that while months of celebrating and advocating for awareness can be helpful, but also adds to those valid overwhelming feelings when you’re new to a diagnosis. While those statistics are true, 50% of babies born with Down syndrome are born with heart defects. There are also incredible advancements in cardiology and amazing physicians like our guest this week Dr. Lorraine Schratz there for your family every step of the way! 

Dr. Schratz is a pediatric and fetal cardiologist at Massachusetts General for Children and an instructor at Harvard Medical School. She acknowledges the fear that comes with a diagnosis but emphasizes the advancements in medicine that have led to fewer follow-up surgeries for people with Down syndrome. Dr. Schratz stresses the importance of providing families with both medical facts and emotional support, tailoring information to their needs, and encouraging patients to ask as many questions as they need to. She shares her advice to create healthy habits for our kiddos with and without heart defects, what to expect when receiving a diagnosis, and recommends resources for support. We’re so grateful for conversations like these, and in the words that Dr. Schratz’s patients wanted to send us, “It’ll be ok!” 

---

SHOW NOTES

• NDSS (National Down Syndrome Society) The Heart And Down Syndrome

• American Heart Association (Dr. Schratz recommends using the health conditions tab for helpful resources and information)
• Global Down Syndrome Foundation (more information and resources on congenital heart defects)
• The Brett Boyer Foundation
• American Academy of Pediatrics: Down syndrome guidelines

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, you know we don’t shy away from asking the hard questions; today we’re diving into a complex one: Can an advocate get it wrong sometimes? We discuss the balance of advocating and learning, the foundation of a good advocate, and how humility shapes our advocacy journey. We explore the responsibility and journey of advocating for those with Down syndrome, and why being a listener and learner is key to effective advocacy. How long do you have to be part of something to be an advocate? What is the foundation of a good advocate? What happens if you do get it wrong? Tune in to hear our personal stories, how we’ve grown along this journey so far, and the importance of humility in advocacy. Join us for a thoughtful conversation you won't want to miss!

---

SHOW NOTES: 

Other episodes to check out:

• 28. Owning Your Influence In ALL Your Spaces!
• 101. Jalondra Davis on Race, Disability, & Advocacy
• 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani
• 197. Exposing The Roots (Racism, Ableism, Microagressions, + More)
• 203. Beyond Checking A Box
• 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate)

JOIN US LIVE!

After six incredible seasons, and nearly 250 episodes, we’re excited to celebrate this one-in-a-million community! Over the last six years we’ve laughed, learned, and shared meaningful conversations, we’re so grateful to every one of you!

Whether you’re a weekly listener or new to The Lucky Few fam, we hope to see you in San Diego or have you tuning in virtually!

When: Friday, March 8th, 6:30 pm- 9:30pm

Where: Haven by Communal, 3381 30th Street San Diego, CA 92104

What: Doors open at 6:30 pm for cocktail hour. Enjoy drinks, merchandise/books from self-advocates, connecting with local DS community partners, and more! The LIVE podcast recording begins at 7:30 pm!

Note: This is an adult-focused event.

We cannot wait to see you there!!

Head to the luckyfewpodcast.com and click on the banner to get your tickets they’re selling fast!

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT
Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we’re celebrating Valentine’s Day with a couple that are sharing their enchanting love story! Their engagement was marked by a viral video and widespread media, Matthew Schwab and fiancé Lucia Romano share everything from their first date to their dreams for the future. This power couple is dedicated to shifting narratives for people with Down syndrome and the entire Intellectual and Developmental Disability community. From being fluent in multiple languages, working, driving, owning a public speaking business, living independently, ballroom dancing, community volunteering, participating as a multi-sport athlete in The Special Olympics, and giving a TEDx Talk, these two are the definition of a power couple! They have a shared passion for advocacy and hope their story will help challenge stereotypes about people with Down syndrome. We discuss their advice for those nervous about dating, and their moms share advice for families navigating their loved one's dating. This is an episode (and love story!) you don’t want to miss!

---

SHOW NOTES

• Watch Matthew & Lucia’s proposal reel that has gone viral!

• Learn more about Matthew Schwab Speaks

• Follow Matthew Schwab on Instagram

• Follow Lucia Romano on Instagram

Listen to past episodes with Matthew:

• 66. Public Speaking & Self Advocacy w/Matthew Schwab

• 183. Following the Lead of Self-Advocates (ft. Matthew Schwab)

Listen to our episode with Down For Love Producer Robyn Paterson

• 234. Producing A Diverse, Authentic, & Honoring Netflix Series (w/Down For Love Producer Robyn Paterson)

• Learn more about the show Down For Love

• Learn more about the show Life Goes On

• Learn more about the show Born This Way

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, last February we (Heather & Josh!) had an unscripted conversation about challenges with IEP’s and what the best setting for Macy’s education would look like. They say a lot can happen in a year, and when it comes to school, that’s an understatement. We’re talking about Macy’s journey in the last year, from a Charter school program and ultimately her decision to return to a life skills program. The importance of seeking advice, but most importantly, following our kid's lead, and asking what they want. If you’re feeling the exhaustion of fighting for a space where your kid feels belonging, we see you, you’re not alone. Join us for another unscripted conversation about inclusion in our schools, how it's worked (and not worked) for our kids the last year, and so much more! Be sure to let us know your thoughts, feelings, and experiences after listening to this episode.

---

SHOW NOTES:

• 198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools 

• 229. Poet, Author, "Levitator of Language" Sid Gosh (w/Mom Dr. Vaish Sarathy)

Other episodes to check out:

• 28. Owning Your Influence In ALL Your Spaces!
• 40. Back to School & All Things Education, Inclusion, & Down Syndrome
• 64. Building Bridges Towards Inclusion w/Barbara Butler
• 85. Is Inclusion Always The Best Option?
• 128. What To Expect From Inclusive Settings
• 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani
• 216. Continuing Affects Of The Pandemic on Inclusion in our Schools (w/Common Ground Society)
• 218. Creating Inclusion For All Learners (w/Tim Villegas) 
• 223. Included, Seen, & Heard: The Impact of Successful Inclusion
  

JOIN US LIVE!

After six incredible seasons, and nearly 250 episodes, we’re excited to celebrate this one-in-a-million community! Over the last six years we’ve laughed, learned, and shared meaningful conversations, we’re so grateful to every one of you!

Whether you’re a weekly listener or new to The Lucky Few fam, we hope to see you in San Diego or have you tuning in virtually!

When: Friday, March 8th, 6:30 pm- 9:30pm

Where: Haven by Communal, 3381 30th Street San Diego, CA 92104

What: Doors open at 6:30 pm for cocktail hour. Enjoy drinks, merchandise/books from self-advocates, connecting with local DS community partners, and more! The LIVE podcast recording begins at 7:30 pm!

Note: This is an adult-focused event.

We cannot wait to see you there!!

Head to the luckyfewpodcast.com and click on the banner to get your tickets they’re selling fast!

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, today we’re diving deep into the heart of our favorite topic: inclusion! We chat about the barriers preventing true inclusion and we're challenging societal norms and asking the important questions about what defines human worth. What kind of person gets to be celebrated? What kind of person with Down syndrome gets to be celebrated? We explore the buzzword status of “inclusion,” the role of privilege in accessing support and services, and so much more. As we navigate this journey, we recognize the honor and burden of advocating for a more inclusive world. Progress in inclusion is happening, but are we truly championing the essence of every individual? Is the current system promoting equal access and opportunities? We’re asking all the questions, you don’t want to miss this thought-provoking episode!

---

SHOW NOTES

• Learn more about regional assembly member Mar Galcerán’s!

Other episodes to check out:

• 17. Self Advocacy - Down Syndrome in DC with Kayla McKeon!
• 28. Owning Your Influence In ALL Your Spaces!
• 40. Back to School & All Things Education, Inclusion, & Down Syndrome
• 58. A Conversation About Race & Down Syndrome w/Mercedes Lara & Kelli Caughman
• 64. Building Bridges Towards Inclusion w/Barbara Butler
• 67. Unpacking Privilege & Understanding Intersectionality w/Jalondra Davis
• 85. Is Inclusion Always The Best Option?
• 92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing
• 101. Jalondra Davis on Race, Disability, & Advocacy
• 126. Creating Opportunities & Changing Perspectives Through Inclusive Employment ft. Wendy Lacey (Cornerstone Montclair)
• 128. What To Expect From Inclusive Settings
• 148. Diversity in the Down Syndrome Community
• 149. The Only Black Mama In The Room - ft. Ashley Dirks (mother/advocate)
• 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani
• 195. Connecting with the Black Down Syndrome Association (ft. Kelli Caughman & Crystal Lotterberry)
• 197. Exposing The Roots (Racism, Ableism, Microagressions, + More)
• 198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools
• 203. Beyond Checking A Box
• 204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, & Charlotte Woodward
• 205. Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko
• 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate)
• 218. Creating Inclusion For All Learners (w/Tim Villegas) 
• 223. Included, Seen, & Heard: The Impact of Successful Inclusion

JOIN US LIVE!

After six incredible seasons, and nearly 250 episodes, we’re excited to celebrate this one-in-a-million community! Over the last six years we’ve laughed, learned, and shared meaningful conversations, we’re so grateful to every one of you!

Whether you’re a weekly listener or new to The Lucky Few fam, we hope to see you in San Diego or have you tuning in virtually!

When: Friday, March 8th, 6:30 pm- 9:30pm

Where: Haven by Communal, 3381 30th Street San Diego, CA 92104

What: Doors open at 6:30 pm for cocktail hour. Enjoy drinks, merchandise/books from self-advocates, connecting with local DS community partners, and more! The LIVE podcast recording begins at 7:30 pm!

Note: This is an adult-focused event.

We cannot wait to see you there!!

Head to the luckyfewpodcast.com and click on the banner to get your tickets they’re selling fast!

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

We love any opportunity to have our friends from Massachusett’s General Hospital’s Down Syndrome Clinic on the show today we’re joined by Dr. Stephanie Santoro! Dr. Santoro, a renowned geneticist and pediatrician, discusses her impactful research in developing a Down syndrome instrument to enhance healthcare for individuals with Down syndrome. From prioritizing patient outcomes to filling gaps in resources, join us in exploring the unique aspects of health for those with Down syndrome and how research is vital to successful healthcare outcomes. Discover the insights gained from direct input, bridging the divide between medical guidelines and the lived experiences of individuals, caregivers, experts, and so much more! Be sure to check out the link in our show notes to be part of this important research survey!

---

SHOW NOTES

• Participate in the survey developed by Dr. Santoro that will help in the future of healthcare for individuals with Down syndrome!

• Learn more about Massachusett’s General Hospital’s Down Syndrome Program

• Mercedes onion remedy for cold season

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Throwback Episode 218: Creating Inclusion For All Learners (w/Tim Villegas - Originally aired 8/1/23)

Friends, we’re taking the month of August to talk all things Back to School, today we kick off the series with a discussion on implementing inclusion in the classroom. We’re joined by Tim Villegas, he’s the director of communications for the Maryland Coalition for Inclusive Education (MCIE), a nonprofit that seeks to be the catalyst for the meaningful and successful inclusion of all learners in their neighborhood schools. Throughout his 16-year career in education, Tim has advocated for including students with extensive support needs in general education classrooms. He is the founder of Think Inclusive, a podcast for inclusive education, and Inclusive Stories, a narrative podcast series about families and school districts fully committed to inclusive education. Join us as we chat about all things inclusion in our schools: advice for educators, parents, and those in leadership looking to create spaces where everyone belongs. This is an episode packed with resources, be sure to check our show notes for all the links to helpful books, organizations, and films!

SHOW NOTES

Learn more about MCIE ⁠Website⁠

Follow MCIE on ⁠Facebook ⁠

Follow MCIE on ⁠Instagram ⁠

Follow MCIE on ⁠Twitter ⁠

Follow MCIE on ⁠LinkedIn ⁠

Learn more about ⁠Think Inclusive⁠

Listen to ⁠Inclusion Stories⁠

Learn more about ⁠TASH⁠

Learn more about ⁠The Beyond Access Model⁠

Check out ⁠Including Samuel⁠

Check out ⁠Who Cares About Kelsey?⁠

Check out ⁠Intelligent Lives⁠

Check out ⁠My Disability Roadmap⁠

Check out ⁠Club 21⁠

 

Books to check out (Educators & Parents): ⁠Leading for All: How to Create Truly Inclusive Excellent Schools⁠

⁠Reimaging Special Education: Using Inclusion as a Framework to Build Equity and Support All Students⁠

⁠Unwanted: Fighting to Belong⁠ 

Check out these episodes: 

⁠10. Inclusion - An Educator’s Perspective with Kristin Enriquez Pt. 1⁠

⁠11. Inclusion - A Parents Perspective with Kristin Enriquez Pt. 2⁠

⁠132. BTS Pt 3 - What's the impact of inclusion? (ft. Kristin Enriquez)⁠

⁠39. Back to School w/IEP Experts Vickie Brett & Amanda Selogie⁠

DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠[email protected]⁠ for more information!

LET’S CHAT

Email ⁠[email protected]⁠ with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Throwback Episode 237. Is There Such A Thing As A Difficult Parent? (Originally aired 12/12/23)

There are so many feelings when we enter spaces alongside our loved ones with Down syndrome and disabilities. The question, “Is there such a thing as a difficult parent?” It made us think deeply about advocacy, boundaries, and how gender, race, and cultural stereotypes can play a role in this question. What does it mean to advocate? What is your job as your child's advocate? If you make people uncomfortable does that make you difficult or does that make you an advocate? Is there a way around advocating and not being labeled a difficult parent? Friends, you don't want to miss our conversation on this hot topic!

---

SHOW NOTES:

• Check out⁠ Open Future Learning's Instagram post⁠ that got this conversation started!

DISCOUNT CODE:

Friends, grab your narrative shifting gear over on⁠ The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSORS:

Thank you,⁠ Enable SNP⁠ for sponsoring this episode!

• ⁠47. Planning for the Future w/Phillip Clark from Enable SNP⁠

• ⁠191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP⁠

Thank you,⁠ Jack’s Basket⁠ for sponsoring this episode!

• ⁠EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket⁠

• ⁠EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket)⁠
• ⁠232. Shifting the Narrative Through Unexpected News Curriculum for Providers (w/Carissa Carroll & Dr. Erin Plummer)⁠

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Throwback Episode 232: Shifting the Narrative Through Unexpected News Curriculum for Providers (w/Carissa Carroll & Dr. Erin Plummer - Originally aired 11/9/23)

Friends, we’re excited to have Jack’s Basket founder Carissa Carroll back on the show! Today she’s joined by Dr. Erin Plummer to chat with us all about a new curriculum they are launching for medical providers. They’re providing practical online training for providers to review the literature and allow reflection on their own experiences of giving a diagnosis. What could they do better? What went well? What were they feeling? How might their patient have felt? Carissa shares her own experience with receiving her son’s Down syndrome diagnosis and her passion for changing a family’s diagnosis story from the very beginning. We’re so grateful for the work Carissa and Dr. Plummer are doing for our community and can’t wait to share this incredible project they’ve been working on that will make a positive impact for so many families!

---

SHOW NOTES

• Learn more about ⁠Jack’s Basket⁠

• ⁠Resources for Providers⁠

• ⁠Prenatal Consult Film⁠

• ⁠205. Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko⁠

Check out previous episodes with Carissa Carroll:

• ⁠44. Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket⁠

• ⁠180. "You make me better" (An Interview with Carissa Carroll, Founder of Jack's Basket)⁠

DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, ⁠Enable SNP ⁠or sponsoring this episode!

• ⁠47. Planning for the Future w/Phillip Clark from Enable SNP⁠

• ⁠191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP⁠

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠[email protected]⁠ for more information!

LET’S CHAT

Email ⁠[email protected]⁠ with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Throwback Episode 234: Producing A Diverse, Authentic, & Honoring Netflix Series (w/ Down For Love Producer Robyn Paterson - Originally aired 11/21/23)

On episode 226 we shared our thoughts on the hit Netflix series Down For Love which follows several people with Down syndrome as they navigate “the triumphs and trials of dating.” If you listened to “Our Thoughts On The Netflix Series Down For Love,” then you know how much we loved this show and appreciated the conversations that it started. We’re so excited to keep the conversation going with the Producer of the show, Robyn Paterson! Robyn is a filmmaker and screen creative based in New Zealand committed to promoting diversity, respect, partnership, and equity both on and off the screen. Best known for Down for Love (Netflix), In the Zone (Apple TV), Grand Designs: New Zealand, and Finding Mercy (Prime Video), and the current President of the Directors and Editors Guild of Aotearoa New Zealand. Friends, we get a behind-the-scenes look at the process of approaching the storytelling of participants with Down syndrome and the intentional decisions that made the show so impactful. Robyn shares the challenges and impactful moments of filming Down For Love, along with the differences from other reality-type shows. We chat about the casting process to ensure diverse and authentic representation, and so much more! We promise there are no spoilers, just an incredible conversation about the responsibility to tell diverse, authentic, and honoring stories of people with disabilities.

---

SHOW NOTES

• ⁠Watch Down For Love⁠

• ⁠Learn more about Robyn Paterson⁠

• Learn more about the ⁠Directors and Editors Guild of Aotearoa New Zealand (DEGANZ)⁠.

• Learn more about Robyn’s Production company, ⁠Sweet⁠.

• Learn more about Paralympic Gold Medalist, ⁠Jai Waite⁠.

• Learn more about ⁠Upside Downs⁠

• ⁠Check out our conversation about Down For Love on episode 226!⁠

DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSORS:

Thank you, ⁠Enable SNP ⁠or sponsoring this episode!

• ⁠47. Planning for the Future w/Phillip Clark from Enable SNP⁠

• ⁠191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP⁠

Thank you, ⁠ABLEnow⁠ for sponsoring this episode!

• ⁠115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck)⁠

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠[email protected]⁠ for more information!

LET’S CHAT

Email ⁠[email protected]⁠ with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Throwback Episode 226. Our Thoughts On The Netflix Series “Down For Love” (Originally aired on 9/26/23)

Have you heard about the Netflix series “Down For Love”?! We’ve been hearing about it from friends, family, and even one of our kid's healthcare providers, all with rave reviews. So we set aside some of the reality shows that we feel a bit guilty about admitting we’ve watched and enjoyed a wholesome reality dating show of people with Down syndrome on a quest for love. This show highlighted so many things for us to think about as parents. The conversations that we’ll need to have about boundaries and consent, what we’d want to see for our kids, and so much more. It of course brought up so many questions that we dive into like: Did the show represent all types of people with Down syndrome? Does the show honor people with Down syndrome? Is the title “Down For Love” problematic or just a fun pun? We’re diving deep into not only the show, but our thoughts (and some fears!) on our kiddos dating. This is an episode you don’t want to miss!

---

SHOW NOTES

• ⁠Learn more about “Down For Love”⁠

• ⁠168. When is it time to have "the talk" with your child with Down syndrome? (ft. Dr. Katie Frank, PhD, OTR/L)⁠

• ⁠More on the backlash on the title “Down For Love”⁠

DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSORS:

Thank you, ⁠Enable SNP ⁠for sponsoring this episode!

• ⁠47. Planning for the Future w/Phillip Clark from Enable SNP⁠

• ⁠191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP⁠

Thank you, ⁠Jack’s Basket⁠ for sponsoring this episode!

• ⁠EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket⁠

• ⁠EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket)⁠

  
  

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠[email protected]⁠ for more information!

LET’S CHAT

Email ⁠[email protected]⁠ with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Throwback Episode 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate - Originally aired 5/23/23)

Friends, we recognize and appreciate that so many of you come to us for our open, honest, and candid conversations week after week. After seeing the response Heather was receiving over on @theluckyfewoffical under a post that she wouldn’t be celebrating an abled person asking a disabled person to prom, we knew this topic deserved another conversation. We also knew the conversation deserved to include a person with disabilities. Our producer and self-advocate Ashley Fraccalossi joins us for this candid conversation on honoring people with disabilities and when that line can get blurred or crossed. She helps break down with us what inspiration p*rn means in the disabled community, unconscious bias, and how her own experiences with disability have shaped her views on this topic. We’re grateful to not only hear from her today, but to continue this important conversation with all of you. May we all continue to learn, listen, and grow from conversations like this together.

---

SHOW NOTES

• We first talked about this topic on EP 169 ⁠The Harm in Using People with Disabilities As "Inspiration" in Clickbait Viral Videos⁠

• Learn more about ⁠unconscious bias⁠

• Watch ⁠Stella Young’s Ted Talk⁠

• Read Heather’s blog post, ⁠“Why Kindness and Good Intentions Are Not Enough”⁠

DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!

LET’S CHAT

Email ⁠[email protected]⁠ with your questions and Good News for future episodes.

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠[email protected]⁠ for more information!

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Throwback Episode 229: Poet, Author, “Levitator Of Language”: Sid Ghosh (w/Mom Dr. Vaish Sarathy - Originally aired 10/17/23)

Happy Down Syndrome Awareness Month, friends!! We’re celebrating BIG this month with some incredible self-advocates chatting about everything from entrepreneurship to marriage! Today, we’re excited to have poet, author, and “levitator of language,” Sid Ghosh on the show! He describes himself as, “just your autistic boy next door with Down syndrome!” His Mom, Dr. Vaish Sarathy joins us as Sid’s communication partner and also shares their journey of using spelling to communicate with the world. This incredible sixteen-year-old is the author of two chapbooks: Give a Book and Proceedings of the Full Moon Rotary Club. It’s a unique opportunity and honor to feature a non-speaker on a podcast and for the first time in The Lucky Few Podcast history, we’re offering a ⁠VIDEO version⁠ of this episode! Friends, whatever version you choose, this is an episode you don’t want to miss!

---

SHOW NOTES

• Follow ⁠Sid on Instagram⁠

• Follow ⁠Dr. Vaish Sarathy on Instagram⁠

• Contact Dr. Vaish Sarathy: ⁠[email protected]⁠

• ⁠Check out Jandy Nelson⁠

  Purchase Sid’s Chapter Books:

• ⁠Proceedings of the Full Moon Rotary Club⁠

• ⁠Give a Book⁠

• Learn more about ⁠Rapid Prompting Method (RPM)⁠

• Learn more about ⁠The Spellers Method⁠

• Learn more about ⁠Spelling To Communicate (S2C)⁠

  
  

Listen To Previous Episodes With Dr. Sarathy:

• ⁠79. Understanding Functional Nutrition for Our Kids w/Down Syndrome, ft. Dr. Sarathy⁠

• ⁠80. Assuming Intelligence in Our Kids w/Down Syndrome, ft. Dr. Sarathy⁠

DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, ⁠ABLEnow⁠ for sponsoring this episode!

• ⁠115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck)⁠

  
  

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠[email protected]⁠ for more information!

LET’S CHAT

Email ⁠[email protected]⁠ with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Throwback Episode 214. Guardianship, Conservatorship, & Supported Decision-Making (Originally aired on 7/4/23)

Friends, what better conversation to have on an episode released on a holiday that celebrates America than to talk about the differences between Guardianship, Conservatorship, and Supported Decision-making? We have attorney and Executive Director of Massachusetts Advocates for Children, Anna Krieger here to help explain the differences and similarities between these options. Anna is a nationally recognized expert on Supported Decision-Making and has trained, advocated, and written widely on the topic alongside decision-makers and their supporters. We’re also joined by self-advocate Craig Kinney and his mom Sandy, who have chosen Supported Decision-Making and are sharing their experience with us today! We hope this episode helps you think about what next steps you may consider when deciding what is best for your family.

---

SHOW NOTES

⁠The Center for Public Representation⁠

⁠National Resource Center for Supported Decision Making⁠

⁠For more information on Conservatorship, Guardianship, & Supported Decision Making by State⁠

⁠Massachusetts Advocates for Children⁠

DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, ⁠Jack’s Basket⁠ for sponsoring this episode!

⁠EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket⁠

⁠EP 180 "You make me better" (An Interview with Carissa Carroll, Founder of Jack's Basket)⁠

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠[email protected]⁠ for more information!

LET’S CHAT

Email ⁠⁠[email protected]⁠⁠ with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Throwback Episode 205: Nurturing Meaningful Connections With Our Kids (Originally aired 5/9/23)

Happy Mother’s Day, friends!! On this week’s episode we’re celebrating with a candid conversation about connecting with your child with Down syndrome! We know how important making meaningful connections with our kids is, today we’re talking all about nurturing those connections. What we’re doing to develop the relationships with our kiddos, learning new ways to give and receive love, and so much more!  And we might even have a surprise performance by none other than our very own Micha Boyett performing her original score of a still untitled Mother’s Day song. We hope all you lucky mama’s out there know we love you, and as always, we’re cheering you on!

---

SHOWNOTES:

⁠75. What makes a family? (Adoption + Motherhood w/Kayla Craig) ⁠

⁠113. Happy Mother's Day! (Ft. Our Very Own Moms)⁠

⁠14. Marriage & Relationships: Parents Raising Children with Down Syndrome⁠

Friends, grab your narrative shifting gear over on ⁠⁠⁠⁠The Lucky Few Merch Shop⁠⁠⁠⁠ and use code PODCAST for 10% off!

LET’S CHAT:

Email [email protected] with your questions and Good News for future episodes.

HELP US SHIFT THE NARRATIVE: Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Throwback Episode 205: Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko (Originally aired 5/2/23)

Friends, we’re so excited to have the brilliant Dr. Brian Skotko and Dr. Noemi Spinazzi back on the show today! They’re here to tell us about a big research project they worked on involving patients with Down syndrome who identify as Black as well as parents of patients who primarily speak Spanish. This work included conducting surveys of parents and primary care physicians from across the country over the last two years. Its primary goal was to identify the barriers for families looking to access adequate care that shouldn’t only be found at specialty Down syndrome clinics in large cities. We chat about structural racism in medical care, striving for cultural humility, some of the surprises they found in their research, and so much more. They share some valuable resources for those without access to a Down syndrome clinic and how we can all strive to be champions for the Down syndrome community. Thank you to Dr. Skotko and Dr. Spinazzi for their continued work in making sure everyone in the Down syndrome community has access to quality health care.

---

SHOWNOTES:

Learn more about ⁠Down Syndrome Clinic To You⁠  

If you want to hear more from Dr. Skotko or Dr. Spinazzi, check out these episodes!

• ⁠63. Health & Down Syndrome w/Dr. Noemi Spinazzi ⁠ 
• ⁠74. Building Brain Power in People w/Down Syndrome, ft. Dr. Brian Skotko⁠ 
• ⁠​​77. Back to School or Back to the Screen? (Covid-19 & the Upcoming School Year ft. Dr. Spinazzi)⁠ 
• ⁠109. Let's talk about the Covid-19 Vaccine - ft. Dr. Spinazzi⁠ 
• ⁠129. How To Keep Your Kids with DS Healthy While Traveling ft. Dr. Spinazzi⁠

Friends, grab your narrative shifting gear over on ⁠⁠⁠The Lucky Few Merch Shop⁠⁠⁠ and use code PODCAST for 10% off!

LET’S CHAT:

Email [email protected] with your questions and Good News for future episodes.

HELP US SHIFT THE NARRATIVE: Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we're kicking off the new year with a bang! In our exciting sixth-season premiere, join us as we dive into the festivities, reflections, and dreams that come with the arrival of 2024.

We're sharing our favorite traditions and bidding farewell to everything we left behind in 2023. Ever wondered about our New Year's Eve and New Year’s Day shenanigans? We spill the beans on the NYC ball drop, the bathroom dilemmas, and why we've never braved the waiting game for those glittering lights.

Join us as we delve into our goals for 2024, both for our families and The Lucky Few Podcast community. Advocacy, inclusion, friendship, hope – these are the themes we're exploring and continuing to champion. We share our dreams of making this community even bigger and better, and we express our gratitude for the best listeners on the planet.

But wait, there's more! We want to hear from you. What are your three words for 2024? Share your dreams, aspirations, and resolutions with us as we embark on another new year. Happy New Year, friends! Let's slay 2024!

SHOW NOTES

Check out Olive and June

Listen to our episode with Sid Ghosh:

• 229. Poet, Author, "Levitator of Language" Sid Gosh (w/Mom Dr. Vaish Sarathy)

Check out our New Year’s Episodes from previous seasons:

• 53. Our Goals for 2020!

• 98. Looking Back on 2020 & Moving Forward in 2021

• 145. Just the Three of Us.. on Grief, New Year's Resolutions, & What's to Come in 2022

• 193. Lets catch up!

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

And just like that, we’re wrapping up our 5th season! 2023, what a year! We’re coming close to ONE MILLION DOWNLOADS, we had listeners in 36 countries, and 64% of listeners discovered us this year! Welcome new and old friends, we’re glad each and every one of you is here, shouting worth and shifting narratives for people with Down syndrome! We’re so grateful we get to connect and have so many incredible guests and conversations on the show. 

Today, we’re reflecting on the incredible conversations we’ve had this year. We're highlighting so many amazing topics and moments from your top listened, most shared, and our favorites! Cheers to a year of connections, good news, and joy that this community has brought us. Stay tuned we’ve got some epic plans for 2024!

---

Top 5 Listened To Episodes of 2023:

• 199. What We Wish We Knew, Had, & Told Ourselves In The First Years…

• 194. Undoing Ableism & Telling True Stories with April Aguilera (writer of "For Paloma")

• 198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools

• 203. Beyond Checking A Box

• 217. The Things People Say

Most Shared Episode of 2023:

• 220. Back To School Jumpstart w/ Dr. Vaish Sarathy

Some of our favorites:

Self-Advocates Episodes:

• Sofia Sanchez 201. Sofia Sanchez: Filming ‘The Hunger Games’, Her New Book, Self-Advocacy, & Middle School

• Kayla McKeon, Matthew Schwab, & Charlotte Woodward in DC 204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, & Charlotte Woodward

• Noah Matthews Matofsky 207. ‘Peter Pan & Wendy’ Star: Noah Matthews Matofsky

• Madison Tevlin & Matthew Von Der Ahe210. Champions On & Off Screen: Madison Tevlin & Matthew Von Der Ahe

• Craig Kinney (With Mom Sandy and attorney/Exec Director of Mass Advocates for Children Anna Kreiger) 214. Guardianship, Conservatorship, & Supportive Decision-Making

• Ronnie Brown 227. French Fries, Modeling, & Meeting the Vice President (w/Ronnie "The Fry Guy" and Sister LaTasha)

• Merrie, Eric, and Collin 228. The Hip Hop Homies with Extra Chromies (w/Merrie, Eric, Collin, & Director Carol Tingey)

• Sid Gosh 229. Poet, Author, "Levitator of Language" Sid Gosh (w/Mom Dr. Vaish Sarathy)

• Grace Reber 230. Artist, Boss Lady, Soon to be Aunt: Grace Reber (w/Mom Bonnie)

• Craig Blackburn & Heather Hancock-Blackburn 231. Love, Marriage, & Eqaulity w/ Craig & Heather (w/Moms Lisa & Pat)

• Celebrated our 200th Episode!! 200. It's our 5 year anniversary!

• Our First-Ever Video and Audio Version Of A Pod Episode with our friends, Sid Ghosh & Dr. Vaish Sarathy!

Our host's picks for their favorite host-only episode this year:

• Mercedes: 206. Nurturing Meaningful Connections With Our Kids

• Heather: 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate)

• Micha: ⁠215. Disability Access Services At Theme Parks⁠

“Producer’s Picks” for 2023

• Ashley’s Pick: 234. Producing A Diverse, Authentic, & Honoring Netflix Series (w/Down For Love Producer Robyn Paterson)  

• Val’s Pick: 205. Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko

• Josh’s Pick: 229. Poet, Author, "Levitator of Language" Sid Gosh (w/Mom Dr. Vaish Sarathy)

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, ABLEnow for sponsoring this episode!

• 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck)

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, grab your workout pants because this episode is all about the positive effects of health, and wellness, and how fitness is for everyone—especially our loved ones with DS.

We’re thrilled to talk with TruFit’s founders, John & Adam White, on the show! Today they share how in 2010, they identified an unmet need within the fitness community, prompting them to establish TruFit Adaptive Fitness. Thirteen years later, their solution is clear: TruFit Adaptive Fitness uses technology to provide fitness solutions for people with intellectual and developmental disabilities, and today they share the vision that fitness is for everyone. 

The TruFit community is doing some revolutionary things by building the fundamental positive message around fitness with modified exercise workouts tailored for specific disabilities. 

From community events to collaborating with local OT, PT, and adaptive PE Coaches and healthcare providers to empowering parents. They are making health and wellness inclusive and comprehensive. Let’s go!

SHOW NOTES

• Learn about TruFit.
• Download the TruFit App 

Follow TruFit:

• Instagram
• Facebook 
• YouTube 
• TikTok

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, AbleNow for sponsoring this episode!

ABLEnow accounts are the result of a grassroots, cross-disability advocacy effort. The idea originated with a group of parents who recognized the inequity of not being able to save money in their child’s name for fear of losing essential benefits (such as Medicaid).

 

These advocates helped to change the law, so people with disabilities can achieve a better life experience.

 

Today, ABLEnow accounts are available to qualified individuals in all 50 states.

 

Learn if you, or someone you know, is eligible for an ABLEnow account at ABLEnow.com

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

There are so many feelings when we enter spaces alongside our loved ones with Down syndrome and disabilities. The question, “Is there such a thing as a difficult parent?” It made us think deeply about advocacy, boundaries, and how gender, race, and cultural stereotypes can play a role in this question. What does it mean to advocate? What is your job as your child's advocate? If you make people uncomfortable does that make you difficult or does that make you an advocate? Is there a way around advocating and not being labeled a difficult parent? Friends, you don't want to miss our conversation on this hot topic!

---

SHOW NOTES:

• Check out Open Future Learning's Instagram post that got this conversation started!

DISCOUNT CODE:

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSORS:

Thank you, Enable SNP for sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

Thank you, Jack’s Basket for sponsoring this episode!

• EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket

• EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket)
• 232. Shifting the Narrative Through Unexpected News Curriculum for Providers (w/Carissa Carroll & Dr. Erin Plummer)

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we’re so excited to have licensed therapist and grief expert, Claire Bidwell Smith on the show to give us some tools and resources for coping with the grief that comes with a Down syndrome diagnosis. Led by her own experiences with grief, and fueled by her work in hospice and private practice, Claire strives to provide support for all kinds of people experiencing grief and is devoted to expanding the conversation around grief and loss. We’re chatting about tools and strategies for grief around a diagnosis, grieving a life we’d imagined for our loved one, managing anxiety around medical issues that can come with a Down syndrome diagnosis, and so much more. No matter where you are in your journey, we want you to know, that you’re not alone. We hope this episode provides some helpful tools, strategies, and support.

---

SHOW NOTES

• Learn more about Claire Bidwell Smith

Order a copy of Claire’s book: Anxiety The Missing Stage of Grief

• Check out Claire’s Podcast A New Day

• Learn more about Elisabeth Kübler-Ross 

• When Things Fall Apart by Pema Chödrön

Check out our episodes with Lindsey Strickland: 

• 36. A Tough Conversation About Sexual Abuse in the Down Syndrome Community w/Lindsey Strickland

• 142. Our Kids are #WorthTheConversation (Sexual Abuse, Safety, & Body Autonomy in the DS Community)

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, ABLEnow for sponsoring this episode!

• 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck)

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT
Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Happy, sad, angry, frustrated, excited, it’s not always easy to know how to express these feelings, especially for our kiddos with Down syndrome. Today we’re talking about all those “big feelings” that can be hard to regulate at times. We’re chatting about how we’ve been working on helping our kiddos handle all those “big feelings” and so much more. How we’ve had to become a “detective” of our kiddo's feelings and learned to recognize how some of them can be affected by nutrition, sleep, activity, etc. Navigating emotions isn’t easy for anyone, putting these feelings into words can sometimes be even harder. Learning what tools have been helpful for our kiddos to express and feel understood has been essential, especially entering those teen years! Friends, this is an episode you don’t want to miss!

---

SHOW NOTES

• Learn more about resources from Dr. Vaish Sarathy on functional nutrition

• Micha’s movie recommendation Everything, Everywhere, All At Once

Related Episodes:

• 15. Discipline and Down Syndrome with Dr. David Stein

• 8. Therapy and All the Feelings

• 79. Understanding Functional Nutrition for Our Kids w/Down Syndrome, ft. Dr. Sarathy

• 134. Social Stories for Kiddos with Down Syndrome (ft. Dr. Lina Patel, PsyD)

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSORS:

Thank you, Enable SNP for sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

Thank you, Jack’s Basket for sponsoring this episode!

• EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket

• EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket)

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

On episode 226 we shared our thoughts on the hit Netflix series Down For Love which follows several people with Down syndrome as they navigate “the triumphs and trials of dating.” If you listened to “Our Thoughts On The Netflix Series Down For Love,” then you know how much we loved this show and appreciated the conversations that it started. We’re so excited to keep the conversation going with the Producer of the show, Robyn Paterson! Robyn is a filmmaker and screen creative based in New Zealand committed to promoting diversity, respect, partnership, and equity both on and off the screen. Best known for Down for Love (Netflix), In the Zone (Apple TV), Grand Designs: New Zealand, and Finding Mercy (Prime Video), and the current President of the Directors and Editors Guild of Aotearoa New Zealand. 
Friends, we get a behind-the-scenes look at the process of approaching the storytelling of participants with Down syndrome and the intentional decisions that made the show so impactful. Robyn shares the challenges and impactful moments of filming Down For Love, along with the differences from other reality-type shows. We chat about the casting process to ensure diverse and authentic representation, and so much more! We promise there are no spoilers, just an incredible conversation about the responsibility to tell diverse, authentic, and honoring stories of people with disabilities.

---

SHOW NOTES

• Watch Down For Love

• Learn more about Robyn Paterson

• Learn more about the Directors and Editors Guild of Aotearoa New Zealand (DEGANZ).

• Learn more about Robyn’s Production company, Sweet.

• Learn more about Paralympic Gold Medalist, Jai Waite.

• Learn more about Upside Downs
  

• Check out our conversation about Down For Love on episode 226!

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSORS:

Thank you, Enable SNP or sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

Thank you, ABLEnow for sponsoring this episode!

• 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck)

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Oprah’s favorite things are legendary, just like our gift guide- prepare to unwrap some magic with our 2023 gift ideas! We’ve got some rad ideas for everyone on your list from gifts for kiddos, grandparents, spouses, teachers, and more! Friends, we’ve scoured the corners of creativity and combed through countless options to find the perfect gifts for this years list. From functional, to educational, to downright stylish, and something to wrap it all up with, we’ve got you covered. You know we can’t resist some fun holiday stories with memories of the worst gifts we’ve ever received. Grab a cup of cocoa, sit back, and relax because The Lucky Few Podcast 2023 Holiday Gift Guide has you covered!

---

SHOW NOTES

Micha’s Picks:

• Down’s & Town’s Scottish Cow Tote 
• Hoodies from Emmet Kyoshi Art 
• Bracelets from The Spotlight Project 
• Tis’ The Season Wrapping Paper from Grace Place Art 

Mercedes’ Picks:

• The Yoto Player Gift Sets 

Sentence building puzzles:

• Puzzle on Sunny’s list

• Puzzle on Sunny’s list

• Speech & Language Learning Kit

• A set of Ky’s Kard’s to practice those writing skills with some Thank-you notes!

Heather’s Picks:

• Mica May’s The Lucky Few Tattoo Necklace 
• The Lucky Few Dad Hat!
• Dance Happy Designs cardholder key rings for gift cards
• Imani Collective x Toni Collier Collection
• NDSS list of self-advocate businesses

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSORS:

Thank you, Jack’s Basket for sponsoring this episode!

• EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket

• EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket)

Thank you, ABLEnow for sponsoring this episode!

• 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck)

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we’re excited to have Jack’s Basket founder Carissa Carroll back on the show! Today she’s joined by Dr. Erin Plummer to chat with us all about a new curriculum they are launching for medical providers. They’re providing practical online training for providers to review the literature and allow reflection on their own experiences of giving a diagnosis. What could they do better? What went well? What were they feeling? How might their patient have felt? Carissa shares her own experience with receiving her son’s Down syndrome diagnosis and her passion for changing a family’s diagnosis story from the very beginning. We’re so grateful for the work Carissa and Dr. Plummer are doing for our community and can’t wait to share this incredible project they’ve been working on that will make a positive impact for so many families!

---

SHOW NOTES

• Learn more about Jack’s Basket

• Resources for Providers

• Prenatal Consult Film

• 205. Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko

Check out previous episodes with Carissa Carroll:

• 44. Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket

• 180. "You make me better" (An Interview with Carissa Carroll, Founder of Jack's Basket)

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP or sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, thank you for celebrating Down Syndrome Awareness Month with us! Today we wrap up our celebration with self-advocates Craig Blackburn & Heather Hancock-Blackburn. This power couple is talking all about love at first sight, marriage equality, long-distance relationships, and so much more! From shifting narratives to building careers, and competing in Special Olympics across the country these incredible self-advocates have so much to be proud of. Heather’s Mom Lisa and Craig’s Mom Pat join us to share what it was like as parents to witness their love story and advice for parents and caregivers. Craig & Heather you had us at hello, we just love your love! You don’t want to miss this epic celebration of love, self-advocacy, and equality. 

---

SHOW NOTES

• Watch Craig & Heather’s Wedding Video
• Follow Craig on Instagram and Facebook
• Follow Heather on Instagram and Facebook

Learn more about marriage equality for people with disabilities:

• ‘Seeking Marriage Equality for People With Disabilities’ NYT Article

• Learn more about Marriage Equality Legislation

• Learn more about Marriage Equality and its effect on benefits

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, ABLEnow for sponsoring this episode!

• 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck)

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Happy Down Syndrome Awareness Month, friends!! We’re celebrating BIG this month with some incredible self-advocates chatting about everything from entrepreneurship to marriage! Today, we’re excited to have artist, entrepreneur, and soon-to-be Aunt, Grace from Grace Place Art! Grace and Mom Bonnie join us to share about their journey starting a small business and the projects they’ve been working on. What started as a fun project of creating original artwork for family has become an online business, collaborations, and opportunities to give back. Grace and her Mom are passionate about empowering others and have spoken to classrooms around the world! When Disney’s Pixar commissioned a piece of artwork, Grace and her parents decided on the perfect character that they felt connected to their own journey. From becoming a boss lady to giving back, to preparing to be an Aunt, and so much more, this is an episode you don't want to miss!

---

SHOW NOTES

• Follow Grace Place Art on Instagram
• Start your Holiday shopping with GracePlace Art

• Check out Grace’s collab with The Happy Planner
• Check out Grace’s collab with Chaos & Kindness

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSORS:

Thank you, Enable SNP for sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP
• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

Thank you, Jack’s Basket for sponsoring this episode!

• EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket
• EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket)

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Happy Down Syndrome Awareness Month, friends!! We’re celebrating BIG this month with some incredible self-advocates chatting about everything from entrepreneurship to marriage! Today, we’re excited to have poet, author, and “levitator of language,” Sid Ghosh on the show! He describes himself as, “just your autistic boy next door with Down syndrome!” His Mom, Dr. Vaish Sarathy joins us as Sid’s communication partner and also shares their journey of using spelling to communicate with the world. This incredible sixteen-year-old is the author of two chapbooks: Give a Book and Proceedings of the Full Moon Rotary Club. It’s a unique opportunity and honor to feature a non-speaker on a podcast and for the first time in The Lucky Few Podcast history, we’re offering a VIDEO version of this episode! Friends, whatever version you choose, this is an episode you don’t want to miss!

---

SHOW NOTES

• Follow Sid on Instagram

• Follow Dr. Vaish Sarathy on Instagram

• Contact Dr. Vaish Sarathy: [email protected]

• Check out Jandy Nelson

  
  Purchase Sid’s Chapter Books:

• Proceedings of the Full Moon Rotary Club

• Give a Book
  

• Learn more about Rapid Prompting Method (RPM)

• Learn more about The Spellers Method

• Learn more about Spelling To Communicate (S2C)

  
  

Listen To Previous Episodes With Dr. Sarathy:

• 79. Understanding Functional Nutrition for Our Kids w/Down Syndrome, ft. Dr. Sarathy

• 80. Assuming Intelligence in Our Kids w/Down Syndrome, ft. Dr. Sarathy

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, ABLEnow for sponsoring this episode!

• 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck)

  
  

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Happy Down Syndrome Awareness Month, friends!! We’re celebrating BIG this month with some incredible self-advocates chatting about everything from entrepreneurship to marriage! We’re excited to have Hip Hop Homies founder and director Carol Tingey along with Homies Merrie Ellsworth, Eric Gardner, and Collin Curtis! Founder and director Carol Tingey started dance classes 5 years ago when she saw the need for activities for our friends with Down syndrome who have aged out of high school. Hip Hop Homies started as a small group of friends getting together to dance and have fun, but has grown into weekly classes and performance outreach! Self-advocates Merrie, Eric, and Collin tell us about their lives and journey to becoming part of The Hip Hop Homie community! Merrie just celebrated another birthday on October 7th, and is “40 and fabulous!” Eric celebrated his birthday on October 8th and turned 53! Collin just graduated from high school and shares his love of participating in rodeos! We’re so excited to introduce you to our new incredible friends!

SHOW NOTES

Follow The Hip Hop Homies on Instagram

Learn more about The Hip Hop Homies

Learn more about Home of the Homies

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSORS:

Thank you, Enable SNP for sponsoring this episode!

47. Planning for the Future w/Phillip Clark from Enable SNP

191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

Thank you, Jack’s Basket for sponsoring this episode!

EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket

EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket)

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Happy Down Syndrome Awareness Month, friends!! We’re celebrating BIG this month with some incredible self-advocates chatting about everything from entrepreneurship to marriage! We’re excited to have entrepreneur, model, and french fry expert, Ronnie Brown aka “The Fry Guy” on the show to celebrate with us! He’s a wrestling enthusiast that you’ll find at the Crossfit gym in his spare time. After having a feeding tube for six years, it was love at first bite when he tried his first fry! Along with his sister LaTasha, Ronnie started selling fries in 2020 at a local festival and today they share everything they’ve learned from starting a small business. They even share a fun story about meeting Vice President Kamala Harris this year! This is an episode you’re not going to want to miss.

---

SHOW NOTES

• Follow @trifryguy on Instagram
• Learn more about The Fry Guy and merch!
• Check out Ronnie’s Series featured on The Lucky Few Foundation
• Watch The Lucky Few Foundation short film “The Life Enthusiast” featuring Ronnie 
• Learn more about SBA (Small Business Administration)

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP or sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP
• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Have you heard about the Netflix series “Down For Love”?! We’ve been hearing about it from friends, family, and even one of our kid's healthcare providers, all with rave reviews. So we set aside some of the reality shows that we feel a bit guilty about admitting we’ve watched and enjoyed a wholesome reality dating show of people with Down syndrome on a quest for love. This show highlighted so many things for us to think about as parents. The conversations that we’ll need to have about boundaries and consent, what we’d want to see for our kids, and so much more. It of course brought up so many questions that we dive into like: Did the show represent all types of people with Down syndrome? Does the show honor people with Down syndrome? Is the title “Down For Love” problematic or just a fun pun? We’re diving deep into not only the show, but our thoughts (and some fears!) on our kiddos dating. This is an episode you don’t want to miss!

---

SHOW NOTES

• Learn more about “Down For Love”

• 168. When is it time to have "the talk" with your child with Down syndrome? (ft. Dr. Katie Frank, PhD, OTR/L)

• More on the backlash on the title “Down For Love”

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSORS:

Thank you, Enable SNP for sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

Thank you, Jack’s Basket for sponsoring this episode!

• EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket

• EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket)

  
  

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we’re catching you up on the fun and exciting weekend we had at The NYC Buddy Walk! Even on a humid September Saturday, we walked, danced, and celebrated Down syndrome with over 2,000 people in Central Park. Our girl Macy was invited to be a Grand Marshal and we share some highlights of her duties and time on stage! We give our tips for attending not only the NYC Buddy Walk, but some tips from our experience participating in our local walks. Whether you’re part of the flagship walk in NYC or one of the many across the country, there’s nothing like the support and community these walks give all those who attend. We’re so grateful to have met so many of you in NYC and look forward to the next walk! 

---

SHOW NOTES

• History of The Buddy Walk
• Learn More About National Down Syndrome Society (NDSS)
• Learn more about Down Syndrome Awareness Month

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP , for sponsoring this episode!

• 47. Planning for the Future w/Phillip Clark from Enable SNP

• 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

  
  

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we have Kayla Craig joining us back on the show to share the incredible message of her new book Every Season Sacred available for pre-order today (out Sept. 19th)! As a former journalist, author, and podcaster Kayla shares how she wanted to write a book speaking to the deep pains, joys, and injustices that come with being human. She hopes this book will speak to the honest lived experience and meet every parent where they are in life. Through the seasons of parenting her daughter Eliza, she’s come to see the world in a whole different way and learned to appreciate embracing all the seasons of life. Kayla invites us to embrace the moments we so often pass by. This is an episode you don’t want to miss!

---

SHOW NOTES

• Pre-Order Every Season Sacred by Kayla Craig 
• Follow Kayla Craig on Instagram 
• Check out Liturgies for Parents
• Check out Kayla’s Podcast Liturgies for Parents

Previous Episode with Kayla Craig

75. What makes a family? (Adoption + Motherhood w/Kayla Craig)

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, ABLEnow for sponsoring this episode!

• 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck)

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

When we first learned about a school that was dedicated to inclusive education practices in a New York Times article this June called A Brooklyn School Pioneers New Ways to Teach Children With Disabilities we knew we had to have them on! Today we’re joined by PS 15, The Patrick F Daly Magnet School of the Arts, Principal Julie Cavanagh, and teachers Rachel Marks and Megan Macfie. It’s through educational pioneers like these educators at PS 15 who are breaking barriers and proving inclusion can work. They have worked hard to create a culture of trust and transparency breaking the barriers of the fear of the unknown and taking the risks needed to make inclusion work. We’re so excited to continue these important conversations about inclusion in our schools.

---

SHOW NOTES

• Check out the NYT ARTICLE A Brooklyn School Pioneers New Ways to Teach Children With Disabilities
• More about Academics, Careers, and Essential Skills (ACES)
• Check out Fighting for Darla: Challenges for Family Care and Professional Responsibility : The Case Study of a Pregnant Adolescent With Autism
• Check out Far From the Tree: Parents, Children and the Search for Identity

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, ABLEnow for sponsoring this episode!

• 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck)

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, can you believe we’re already heading into Fall?! We’ve had a busy summer full of adventures! Today, we’re catching everyone up on all the things we’ve been up to the last few months, from vacations to camps to the NDSC Convention. We’re chatting about all our summer fun! We share some favorite moments from seeing and meeting so many friends at the NDSC Convention. We celebrate being recognized with the Media Award at the 51st National Down Syndrome Congress Awards. All of our kids went to camps this summer, we chat about how we chose each camp and our experiences with each. Join us as we reflect on some amazing adventures and cherished memories made this summer!

---

SHOW NOTES

• Get your own Lucky Few Tatoo Necklaces from Mica May
• Learn more about the National Down Syndrome Congress
• Hope Heals Camp

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, ABLEnow for sponsoring this episode!

115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck)

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, today we’re talking about school and friendship in a different way, this episode is to the parents of our kid's peers. We’re sharing our thoughts on having conversations every kid deserves to have about disability and why it’s important. We think about our own childhoods and our first interactions with people with disabilities. How we as parents can make intentional choices about the way we talk about disability with our kids. We share some encouraging moments we’ve seen other parents approach including our kids with Down syndrome. Let’s keep shifting those narratives parents, whether you have a child with Down syndrome or not!

---

SHOW NOTES

From this episode:

• Check out Everyone Belongs book & free downloads!

• Check out Different- A Great Thing To Be book & free classroom kit!

Listen to the episode with Micha & her friend Melynn- 6. Friendship Pt. 2 with Guest, Melynn Henry

Other resources:

• How to teach children about disabilities and inclusion

• Strategies for talking to kids about disability

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, Jack’s Basket for sponsoring this episode!

• EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket

• EP 180 "You make me better" (An Interview with Carissa Carroll, Founder of Jack's Basket)

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

We are so excited to have Dr. Vaish Sarathy back on the show! Vaish is here to discuss counterintuitive ideas to jumpstart learning, reading comprehension, and so much more! She’s a Functional Nutrition Practitioner and Math and Science Educator. She comes to Nutrition and Education with a mission to reframe health, cognition, and learning for children with Down syndrome or Autism. Her perspective is shaped by her Autistic, non-speaking 16-year-old son, with Down syndrome: a published poet and author. She challenges all of us to rid the limiting assumptions from our expectations of where our learners should be in their educational journey. Instead: assuming intelligence aggressively, knowing our learners have the ability to learn and understand how to bridge the gaps to reach them. You don’t want to miss this one, friends!

---

SHOW NOTES

• Follow Dr. Vaish Sarathy on Instagram
• Check out Dr. Sarathy’s website for more information and resources
• Learn more about SOS Approach To Feeding
• Learn more about So Happy To Learn At Home with Mrs. Terry Brown
• Check out I-ASC

Listen To Previous Episodes With Dr. Sarathy:

• 79. Understanding Functional Nutrition for Our Kids w/Down Syndrome, ft. Dr. Sarathy

• 80. Assuming Intelligence in Our Kids w/Down Syndrome, ft. Dr. Sarathy

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Our kiddos are going into third, fourth, and ninth grade this year! Today, we’re sharing some of the tips, tricks, and routines we’ve found helpful. We’re catching you up on our IEPs for this year…there were some letters back and forth after our end-of-school-year episode! How we get back into those school routines and break all those summer habits of counting pool days as showers and late bedtimes! Our tips for creating independence in our kiddo's routines and so much more. For the parents sending your kiddo’s off to school for the first time we’ve got some words of encouragement and advice! Friends, no matter where you’re at on the school journey, you’ve got this!

SHOW NOTES

• Pre-Order Micha’s New Book: Blessed Are The Rest Of Us

• Heart Christian Academy

• So Happy To Learn At Home with our friend Mrs. Terry Brown

• Check out this episode with Mrs, Brown 12. Education - So Happy to Learn with Mrs. Terry Brown

• Check out resources from Ashley Barlow 

• Listen to 131. BTS Pt 2 - Preparing for the School Year.. IEPS + Special Education w/Ashley Barlow

• Listen to 209. End of School Year Reflections

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we’re taking the month of August to talk all things Back to School, today we kick off the series with a discussion on implementing inclusion in the classroom. We’re joined by Tim Villegas, he’s the director of communications for the Maryland Coalition for Inclusive Education (MCIE), a nonprofit that seeks to be the catalyst for the meaningful and successful inclusion of all learners in their neighborhood schools. Throughout his 16-year career in education, Tim has advocated for including students with extensive support needs in general education classrooms. He is the founder of Think Inclusive, a podcast for inclusive education, and Inclusive Stories, a narrative podcast series about families and school districts fully committed to inclusive education. Join us as we chat about all things inclusion in our schools: advice for educators, parents, and those in leadership looking to create spaces where everyone belongs. This is an episode packed with resources, be sure to check our show notes for all the links to helpful books, organizations, and films!

SHOW NOTES

Learn more about MCIE Website

Follow MCIE on Facebook 

Follow MCIE on Instagram 

Follow MCIE on Twitter 

Follow MCIE on LinkedIn 

Learn more about Think Inclusive

Listen to Inclusion Stories

Learn more about TASH

Learn more about The Beyond Access Model

Check out Including Samuel

Check out Who Cares About Kelsey?

Check out Intelligent Lives

Check out My Disability Roadmap

Check out Club 21

 

Books to check out (Educators & Parents): Leading for All: How to Create Truly Inclusive Excellent Schools

Reimaging Special Education: Using Inclusion as a Framework to Build Equity and Support All Students

Unwanted: Fighting to Belong 

Check out these episodes: 

10. Inclusion - An Educator’s Perspective with Kristin Enriquez Pt. 1

11. Inclusion - A Parents Perspective with Kristin Enriquez Pt. 2

132. BTS Pt 3 - What's the impact of inclusion? (ft. Kristin Enriquez)

39. Back to School w/IEP Experts Vickie Brett & Amanda Selogie

DISCOUNT CODE

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HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

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Friends, we’ve all been there, those cringy shoulders-up comments that catch us off guard and leave us wondering why people think saying certain things are ok. They leave us wondering how to respond and a lot of times regretting what we didn’t say. We chat about some of our cringy experiences, what we said (and wish we would have said) in the moment, and so much more. We can’t promise we have all (or any!) answers, but you know we have thoughts and experiences to share! This is a conversation you’re not going to want to miss!

SHOW NOTES

88. (Un)learning the Advocacy Language

172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani 

197. Exposing The Roots (Racism, Ableism, Microagressions, + More)

Woman’s Day article: 10 Things You Should Never Say to a Mother of a Child with Down Syndrome

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, Jack’s Basket for sponsoring this episode!

EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket

EP 180 "You make me better" (An Interview with Carissa Carroll, Founder of Jack's Basket)

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

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It has been over three years since the Covid-19 pandemic began and today we are chatting about how our school systems have seen continued impact on students, teachers, and parents. Who better to chat with than Larkin O’Leary and Emily King, representatives of the Common Ground Society?! Larkin runs the nonprofit @common.ground.society, what started as “Just Two Moms” doing a presentation on Down syndrome in a preschool classroom has led to advocacy at over 90 different schools in 5 counties and a few trips to California’s capitol! Today she’s joined by Emily King, a presenter, Common Ground Society’s board treasurer, and a mother to a child with Down syndrome. We chat about the positive impact of inclusive teaching on students of all abilities, how we can work together to create meaningful change, and so much more. Friends, we’re so excited to have them on today chatting all about the incredible work they’re doing in our schools!

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SHOW NOTES

Learn more about Common Ground Society

Listen to Larkin O’Leary’s TedX Talk: Fostering Differences on Common Ground

Listen to previous episodes with Common Ground Society:

70. The Power of "Just Two Moms" w/Jessica Hunter & Larkin O'Leary

91. Putting the "Social" In Social Distancing w/Jessica Hunter & Larkin O'Leary

More episodes to check out:

67. Unpacking Privilege & Understanding Intersectionality w/Jalondra Davis

101. Jalondra Davis on Race, Disability, & Advocacy

94. IEPs during Covid-19, ft. IEP Lawyers Vickie Brett & Amanda Selogie

The Myth of Average Ted Talk mentioned in this episode

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

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Today we’re talking about our personal experiences using disability access services at theme parks! We know how fun (and stressful) day trips can be we’re sharing all our favorite tips and tricks for planning your next theme park adventure. From getting the most out of your access passes, to finding what restaurants offer food allergy-friendly options, our must-have items to pack for the day, and so much more! We’re sharing our personal experiences with using these services at Disney, Universal Studios, Knott’s Berry Farm, Sesame Place, and Legoland! Friends, this episode is a must-listen before making your next theme park plans!

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SHOW NOTES

Disney 

Sesame Place

Knott’s Berry Farm

Universal Studios Hollywood

Universal Studios Orlando

Legoland New York
Legoland California

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, what better conversation to have on an episode released on a holiday that celebrates America than to talk about the differences between Guardianship, Conservatorship, and Supported Decision-making? We have attorney and Executive Director of Massachusetts Advocates for Children, Anna Krieger here to help explain the differences and similarities between these options. Anna is a nationally recognized expert on Supported Decision-Making and has trained, advocated, and written widely on the topic alongside decision-makers and their supporters. We’re also joined by self-advocate Craig Kinney and his mom Sandy, who have chosen Supported Decision-Making and are sharing their experience with us today! We hope this episode helps you think about what next steps you may consider when deciding what is best for your family.

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SHOW NOTES

The Center for Public Representation

National Resource Center for Supported Decision Making

For more information on Conservatorship, Guardianship, & Supported Decision Making by State

Massachusetts Advocates for Children

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, Jack’s Basket for sponsoring this episode!

EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket

EP 180 "You make me better" (An Interview with Carissa Carroll, Founder of Jack's Basket)

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

LET’S CHAT

Email ⁠[email protected]⁠ with your questions and Good News for future episodes.

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Today we’re talking about our personal experiences with adaptive and inclusive programs. We know both can be successful, we also know what's worked and what hasn’t worked for our kiddos. From basketball, baseball, dance, surfing, theater, gymnastics, ski lessons, soccer, and swim team, we’ve tried what seems like every activity imaginable! We’ve seen our kids thrive in both inclusive and adaptive programs, and we’ve also seen our kids face challenges with both. Let’s pause and realize that these spaces can be so beautiful but equally hard for our kiddos. We chat about how and when we step in and say something, and when we’ve learned to simply step away. No matter what kind of program works best for your child, there’s nothing better than seeing our kids thrive and develop relationships with friends of all abilities. No matter what season of finding the best activity or program for your child you’re in, we hope you know you’re not alone in the trial and error of finding just the right spaces for your incredible kids.

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SHOW NOTES

Check out A Walk on Water Surfing 

Check out Challengers Athletics 

Check out YMCA

Learn more about Adaptive Sports

Related episodes:

85. Is Inclusion Always The Best Option?

172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, we’re so excited to have National Down Syndrome Congress (NDSC) Executive Director, Jordan Kough on the show today! He’s here to tell us what to expect at the 51st NDSC Convention, discuss the impact of the Down syndrome community working together, and so much more! We chat about the disability rights movement and how advocacy has created meaningful changes that have impacted policy changes at State and Federal levels. How coming together at NDSC Convention and participating in the advocacy boot camps, self-advocate sessions, educator’s conferences, and other workshops can give us the tools we need to be change-makers in our own communities. We know what amazing friendships we’ve made at past Convention’s and we hope to see you in Florida for this year’s NDSC Convention!!

SHOW NOTES

• Check out NDSC 
• Call NDSC for more information or support: 1-800-232-6372 (Mon-Fri 9:00am-5:30pm EST)

• Learn more about the Educators Conference
• Join us at the 51st NDSC Convention in Orlando, FL July 20-23, 2023!
• Learn more about the late disability rights activist Judy Heumann

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Dads, father figures, this one’s for you! Today The Lucky Few Dads are taking over to chat about nurturing the connections with their kiddos with Down syndrome and what this journey of fatherhood has taught them so far. Josh, Andy, and Chris share what they’d tell their younger selves and how they’ve grown as fathers so far. Some of the changes they’ve made in their careers and family dynamics that have benefited their families. How important it is to normalize asking for support from friends and family. Looking for opportunities to get involved with their kiddos, being flexible while finding what works best for their family, and so much more. They take a moment to brag about their wives and share the superpowers of our three favorite ladies! Friends, you won’t expect their answers!! Happy Father’s Day to all the father figures out there advocating and learning from your kiddos every day! We see you and celebrate you!  

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SHOW NOTES

Listen to EP 120 with Josh & Chris

Listen to the Mom’s take on nurturing connections with our kiddos!

More resources Josh, Chris, & Andy love:

Check out D.A.D.S 

Check out Fatherhood.gov 

Check out Dad to Dad Podcast

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Today on the show we have two talented self-advocates and the stars of the movie Champions! Madison Tevlin and Matthew Von Der Ahe join us to chat about the audition process, working with Woody Harrelson, some behind the scenes secrets, and so much more! They tell us about their characters' sassy and hilarious attitudes and warning an explicit word or two may be used…ear muffs!! From voiceover acting, modeling, speaking at conferences, working at a restaurant, dancing and crafting these dynamic friends are keeping busy! We hear all about their plans for the future and can’t wait to see what’s next for these two. Friends, you don’t want to miss this fun and delightful episode!

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SHOW NOTES

• Follow Madison Tevlin on Instagram

• Follow Matthew Von Der Ahe on Instagram

• Watch Champions

• Listen to our first interview with Madison Tevlin 184. Busting Myths About Down Syndrome - ft. Madison Tevlin

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Let's give ourselves all a round of applause, high fives, and cheers. We've made it through another school year! We know each year comes with its challenges and triumphs, today we’re reflecting on the good, bad, and in between of the 2022-2023 school year. We catch you up on what grades our kiddos are finishing up and what next year has in store. We’re chatting about homeschooling, charter schools, our frustrations with IEP’s, placement testing, and more. Looking ahead to next year we give advice on what we could do differently and what we wouldn’t change. Join us as we talk through what has us feeling tired, frustrated, but hopeful. Remember friends, we’re cheering you on!

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SHOW NOTES

• 78. Building Trust (Not Barriers) w/Your Child's IEP Team
• 39. Back to School w/IEP Experts Vickie Brett & Amanda Selogie
• 131. BTS Pt 2 - Preparing for the School Year.. IEPS + Special Education w/Ashley Barlow
• 12. Education - So Happy to Learn with Mrs. Terry Brown
• Learn about Handwriting Without Tears

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

LET’S CHAT

Email [email protected] with your questions and Good News for future episodes.

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!

--- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support